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Dying For Change (2019)
Journal Article
Glover, G., O'Leary, L., Shooshtari, S., Taggart, L., Trollor, J., & Hatton, C. (2019). Dying For Change. Journal of Intellectual Disability Research, 63(7), 633-639. https://doi.org/10.1111/jir.12650

Purpose: To discuss the premature deaths of people with intellectual disabilities internationally, what is being done and what is needed to make a real difference. Rationale: People with intellectual disabilities are dying much younger than other... Read More about Dying For Change.

Pilot feasibility study of the Walking Away from Diabetes programme for adults with intellectual disabilities in two further education colleges: Process evaluation findings (2019)
Journal Article
Maine, A., Brown, M. J., Dickson, A., & Truesdale, M. (2019). Pilot feasibility study of the Walking Away from Diabetes programme for adults with intellectual disabilities in two further education colleges: Process evaluation findings. Journal of Applied Research in Intellectual Disabilities, 32(5), 1034-1046. https://doi.org/10.1111/jar.12593

Background: People with intellectual disabilities (ID) remain at high risk of developing type 2 diabetes (T2D) due to lifestyle associated risk factors. Educational programs have been adapted for people with ID targeting ongoing T2D self-management.... Read More about Pilot feasibility study of the Walking Away from Diabetes programme for adults with intellectual disabilities in two further education colleges: Process evaluation findings.

It's Okay to Teach People with an Intellectual Disability about Their Disability (2018)
Journal Article
Spassiani, N. A. (2018). It's Okay to Teach People with an Intellectual Disability about Their Disability. The Journal of Postsecondary Education and Disability, 31(3), 287-294

This paper introduces a newly accredited university programme for students with an intellectual disability (ID). The curriculum is largely based on disability studies pedagogy that creates awareness of the social, political, and economic factors that... Read More about It's Okay to Teach People with an Intellectual Disability about Their Disability.

Qualitative exploration of the barriers to, and facilitators of, screening children for autism spectrum disorder in Oman (2018)
Journal Article
Al Maskari, T., Melville, C., Al Farsi, Y., Wahid, R., & Willis, D. (2020). Qualitative exploration of the barriers to, and facilitators of, screening children for autism spectrum disorder in Oman. Early Child Development and Care, 190(11), 1762-1777. https://doi.org/10.1080/03004430.2018.1550084

Few studies explored the challenges associated with screening of autism spectrum disorder (ASD) in Arab and Middle Eastern countries. This study aims to explore the facilitators of and barriers to screening for ASD in Oman. The study reported the ini... Read More about Qualitative exploration of the barriers to, and facilitators of, screening children for autism spectrum disorder in Oman.

An evaluation of mainstream type 2 diabetes educational programmes in relation to the needs of people with intellectual disabilities: A systematic review of the literature (2018)
Journal Article
Brown, M. J., Maine, A., Brown, M. .., Dickson, A., & Truesdale, M. (2018). An evaluation of mainstream type 2 diabetes educational programmes in relation to the needs of people with intellectual disabilities: A systematic review of the literature. Journal of Applied Research in Intellectual Disabilities, 32(2), 256-279. https://doi.org/10.1111/jar.12544

Background Risk reduction and self‐management programs for type 2 diabetes (T2D) are commonplace. However, little is known about their appropriateness for people with intellectual disabilities (ID). This review evaluates successful components and th... Read More about An evaluation of mainstream type 2 diabetes educational programmes in relation to the needs of people with intellectual disabilities: A systematic review of the literature.

Using Photovoice as a Participatory Method to Identify and Strategize Community Participation with People with Intellectual and Developmental Disabilities (2018)
Journal Article
Angell, A. M., Heffron, J. L., Spassiani, N. A., Heffron, J., Hammel, J., & Angell, A. (2018). Using Photovoice as a Participatory Method to Identify and Strategize Community Participation with People with Intellectual and Developmental Disabilities. Scandinavian Journal of Occupational Therapy, 25(5), 382-395. https://doi.org/10.1080/11038128.2018.1502350

Background: Adults with intellectual and developmental disabilities (I/DD) experience barriers to community participation, yet their insider experiences of environmental barriers and supports to participation are largely absent from the literature.... Read More about Using Photovoice as a Participatory Method to Identify and Strategize Community Participation with People with Intellectual and Developmental Disabilities.

Colorectal Cancer in People with Intellectual Disabilities (2018)
Journal Article
Willis, D., Samalin, E., & Satgé, D. (2018). Colorectal Cancer in People with Intellectual Disabilities. Oncology, 95(6), 323-336. https://doi.org/10.1159/000492077

People with intellectual disabilities (PWIDs) are now living longer; thus, the incidence of cancer within this population is increasing. Available data indicate an excess of digestive tract cancers in PWIDs, but colorectal cancer has rarely been spec... Read More about Colorectal Cancer in People with Intellectual Disabilities.

Health Promotion and Wellness Initiatives Targeting Chronic Disease Prevention and Management for Adults with Intellectual and Developmental Disabilities: Recent Advancements in Type 2 Diabetes (2018)
Journal Article
Taggart, L., Truesdale, M., Dunkley, A., House, A., & Russell, A. M. (2018). Health Promotion and Wellness Initiatives Targeting Chronic Disease Prevention and Management for Adults with Intellectual and Developmental Disabilities: Recent Advancements in Type 2 Diabetes. Current Developmental Disorders Reports, 5(3), 132-142. https://doi.org/10.1007/s40474-018-0142-5

Purpose of Review The aim of this paper was to review the recent international developments in health promotion and wellness initiatives targeting chronic disease prevention and management for adults with intellectual and developmental disabilities... Read More about Health Promotion and Wellness Initiatives Targeting Chronic Disease Prevention and Management for Adults with Intellectual and Developmental Disabilities: Recent Advancements in Type 2 Diabetes.

Diabetes in people with learning disabilities (2018)
Book Chapter
Truesdale, M., & Taggart, L. (2018). Diabetes in people with learning disabilities. In S. Hardy, P. Woodward, & E. Chaplin (Eds.), Supporting the physical health needs of people with learning disabilities, 73-82. Pavilion Publishing & Media Ltd

This book chapter aims to increase awareness and knowledge of how diabetes presents itself, as well as how it can be presented in the first place, in people with a learning disability and best practice in assessment and treatment.

The experience of type 2 diabetes self-management in adults with intellectual disabilities and their caregivers: A review of the literature using meta-aggregative synthesis and an appraisal of rigour (2018)
Journal Article
Maine, A., Brown, M., Dickson, A., & Truesdale, M. (2020). The experience of type 2 diabetes self-management in adults with intellectual disabilities and their caregivers: A review of the literature using meta-aggregative synthesis and an appraisal of rigour. Journal of Intellectual Disabilities, 24(2), 253-267. https://doi.org/10.1177/1744629518774172

People with intellectual disabilities (ID) experience significant barriers to diabetes self-management (DSM), yet there remains a paucity of research within this population. An overview of the literature on people with ID and their caregivers’ exper... Read More about The experience of type 2 diabetes self-management in adults with intellectual disabilities and their caregivers: A review of the literature using meta-aggregative synthesis and an appraisal of rigour.

Systematic review: cultural adaptation and feasibility of screening for autism in non-English speaking countries (2018)
Journal Article
Al Maskari, T. S., Melville, C. A., & Willis, D. S. (2018). Systematic review: cultural adaptation and feasibility of screening for autism in non-English speaking countries. International Journal of Mental Health Systems, 12(1), https://doi.org/10.1186/s13033-018-0200-8

Aim: To explore the feasibility of screening for Autism spectrum disorder in Non-English-Speaking Countries, the cultural influences and the nurses' role in the screening process. Background: The prevalence Autism spectrum disorder (ASD) is rising... Read More about Systematic review: cultural adaptation and feasibility of screening for autism in non-English speaking countries.

Early death and causes of death of people with Down syndrome: A systematic review (2018)
Journal Article
O'Leary, L., Hughes-McCormack, L., Dunn, K., & Cooper, S. (2018). Early death and causes of death of people with Down syndrome: A systematic review. Journal of Applied Research in Intellectual Disabilities, 31(5), https://doi.org/10.1111/jar.12446

Background: It is thought that people with Down syndrome die younger than the general population, but that survival rates are improving. Methods: Five databases were searched for key words related to intellectual disabilities, Down syndrome, and mo... Read More about Early death and causes of death of people with Down syndrome: A systematic review.

People with Learning Disabilities in Scotland: 2017 Health Needs Assessment Update Report (2017)
Report
Truesdale, M., & Brown, M. (2017). People with Learning Disabilities in Scotland: 2017 Health Needs Assessment Update Report. Glasgow: NHS Health Scotland

The health needs assessment provides a broad overview of the current research evidence of the health needs of adults with learning disabilities. It is an update of the 2004 health needs assessment.

Early death and causes of death of people with intellectual disabilities: A systematic review (2017)
Journal Article
O'Leary, L., Cooper, S., & Hughes-McCormack, L. (2017). Early death and causes of death of people with intellectual disabilities: A systematic review. Journal of Applied Research in Intellectual Disabilities, https://doi.org/10.1111/jar.12417

Background: Death of people with intellectual disabilities is considered to be earlier than for the general population. Methods: Databases were searched for intellectual disability AND death key words. Strict inclusion/exclusion criteria were us... Read More about Early death and causes of death of people with intellectual disabilities: A systematic review.

Examining Chronic Disease, Pain-Related Impairment, and Physical Activity Among Middle-Aged and Older Adults in Canada: Implications for Current and Future Aging Populations (2017)
Journal Article
Meisner, B. A., Linton, V., Séguin, A., & Spassiani, N. A. (2017). Examining Chronic Disease, Pain-Related Impairment, and Physical Activity Among Middle-Aged and Older Adults in Canada: Implications for Current and Future Aging Populations. Topics in Geriatric Rehabilitation, 33(3), 182-192. https://doi.org/10.1097/tgr.0000000000000154

Purpose: With high levels of chronic disease (CD) and pain-related functional impairment (PFI), and low levels of physical activity (PA) among middle-aged and older adults, it is important to investigate ways to design age- and health condition-appro... Read More about Examining Chronic Disease, Pain-Related Impairment, and Physical Activity Among Middle-Aged and Older Adults in Canada: Implications for Current and Future Aging Populations.

Getting Out There: Community Support Services for People With Intellectual and Developmental Disabilities in Medicaid HCBS Waivers (2017)
Journal Article
Friedman, C., & Spassiani, N. A. (2017). Getting Out There: Community Support Services for People With Intellectual and Developmental Disabilities in Medicaid HCBS Waivers. Inclusion, 5(1), 33-44. https://doi.org/10.1352/2326-6988-5.1.33

Despite an increased number of community-based services, people with intellectual and developmental disabilities (IDD) continue to struggle with meaningful community participation and often feel they are not valued community members. This study exami... Read More about Getting Out There: Community Support Services for People With Intellectual and Developmental Disabilities in Medicaid HCBS Waivers.

Implementing Article 3 of the United Nations Convention on the Rights of the Child: best interests, welfare and well-being (2016)
Book
E. E. Sutherland, & L. B. MacFarlane (Eds.), (2016). Implementing Article 3 of the United Nations Convention on the Rights of the Child: best interests, welfare and well-being

The UN Convention on the Rights of the Child is acknowledged as a landmark in the development of children's rights. Article 3 makes the child's best interests a primary consideration in all actions concerning children, and requires States Parties to... Read More about Implementing Article 3 of the United Nations Convention on the Rights of the Child: best interests, welfare and well-being.

Supported Decision-Making: Good Practice Guide (2016)
Report
Stavert, J. (2016). Supported Decision-Making: Good Practice Guide. Mental Welfare Commission for Scotland

Supported decision-making maximizes an individual's ability to ensure that their rights, will and preferences are at the centre of all decisions that concern them...

Measurement properties of the Illness Perception Questionnaire in practitioners working with patients with co-morbid schizophrenia and learning disability (2016)
Journal Article
Martin, C., Fleming, M., & McCorkindale, S. (2016). Measurement properties of the Illness Perception Questionnaire in practitioners working with patients with co-morbid schizophrenia and learning disability. European journal for person centered healthcare, 4(1), 215-220. https://doi.org/10.5750/ejpch.v4i1.1073

Rationale, aims and objectives: The widely-used Illness Perception Questionnaire (IPQ) adapted for use in patients with major mental health problems and those who care and work with them, was originally developed for evaluating the illness perception... Read More about Measurement properties of the Illness Perception Questionnaire in practitioners working with patients with co-morbid schizophrenia and learning disability.

Evaluating the Implementation of Health Checks for Adults With Intellectual and Developmental Disabilities in Primary Care: The Importance of Organizational Context (2016)
Journal Article
Durbin, J., Selick, A., Casson, I., Green, L., Spassiani, N., Perry, A., & Lunsky, Y. (2016). Evaluating the Implementation of Health Checks for Adults With Intellectual and Developmental Disabilities in Primary Care: The Importance of Organizational Context. Intellectual and Developmental Disabilities, 54(2), 136-150. https://doi.org/10.1352/1934-9556-54.2.136

Compared to other adults, those with intellectual and developmental disabilities have more health issues, yet are less likely to receive preventative care. One strategy that has shown success in increasing prevention activities and early detection of... Read More about Evaluating the Implementation of Health Checks for Adults With Intellectual and Developmental Disabilities in Primary Care: The Importance of Organizational Context.