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Outputs (51)

Literature Review on Antimicrobial Resistance In Relation To The Environment In Scotland (2024)
Report
Wojcik, G., Anderson, L., Johnston, L., Moffat, S., & Morrison, D. (2024). Literature Review on Antimicrobial Resistance In Relation To The Environment In Scotland. Environmental Standards Scotland

Commissioned literature review on the key causes, impacts and controls for anti-microbial resistance (AMR) in the environment that are relevant to Scotland. The review summarises what is currently known about the impact of AMR on the environment and... Read More about Literature Review on Antimicrobial Resistance In Relation To The Environment In Scotland.

Practicalities of promoting practice‐based learning in end of life care for care home staff: Lessons from “online” supportive conversations and reflection sessions (2024)
Journal Article
Hockley, J., Watson, J., Johnston, L., & Shenkin, S. D. (2024). Practicalities of promoting practice‐based learning in end of life care for care home staff: Lessons from “online” supportive conversations and reflection sessions. International Journal of Older People Nursing, 19(1), Article e12598. https://doi.org/10.1111/opn.12598

Introduction: Deaths in care homes and “at home” are anticipated to account for a third of UK deaths by 2040. Currently, palliative and end of life care are not part of statutory training in care homes. Reflective practice is a tool that can facilita... Read More about Practicalities of promoting practice‐based learning in end of life care for care home staff: Lessons from “online” supportive conversations and reflection sessions.

Supporting the wellbeing of care home staff: lessons from the first wave of the COVID-19 pandemic (2023)
Journal Article
Johnston, L., Rambabu, L., Malcolm, C., Hockley, J., & Shenkin, S. D. (2023). Supporting the wellbeing of care home staff: lessons from the first wave of the COVID-19 pandemic. Journal of Long-Term Care, 195–208. https://doi.org/10.31389/jltc.205

The wellbeing of care home staff and the need to support them at work was highlighted with devastating clarity by the COVID pandemic. This small study explores what online and at work wellbeing resources were available to frontline care home workers... Read More about Supporting the wellbeing of care home staff: lessons from the first wave of the COVID-19 pandemic.

Research Report for COVID-19 Public Inquiry (2022)
Report
McKay, C., McKay, E., Stavert, J., Murray, J., Johnston, L., & Macdonald, A. (2022). Research Report for COVID-19 Public Inquiry. Scottish Covid-19 Inquiry

This report was commissioned by the Scottish Covid-19 Inquiry as introductory scoping research.

Developing a Care Home Data Platform in Scotland: a mixed methods study of data routinely collected in care homes (2022)
Journal Article
Shenkin, S. D., Johnston, L., Hockley, J., & Henderson, D. A. (2022). Developing a Care Home Data Platform in Scotland: a mixed methods study of data routinely collected in care homes. Age and ageing, 51(12), 1-9. https://doi.org/10.1093/ageing/afac265

Background: Care homes collect extensive data about their residents, and their care, in multiple ways, for multiple purposes. We aimed to (1) identify what data are routinely collected, and (2) collate care home managers’ views and experiences of col... Read More about Developing a Care Home Data Platform in Scotland: a mixed methods study of data routinely collected in care homes.

Online Supportive Conversations and Reflection Sessions (OSCaRS): A Feasibility Study with Care Home Staff during the Pandemic (2022)
Journal Article
Johnston, L., Hockley, J., Watson, J., & Shenkin, S. D. (2022). Online Supportive Conversations and Reflection Sessions (OSCaRS): A Feasibility Study with Care Home Staff during the Pandemic. International journal of practice-based learning in health and social care, 10(1), 48-58. https://doi.org/10.18552/ijpblhsc.v10i1.743

Care homes care for people with complex needs, supporting them to the end of life and are now being seen as the ‘de facto’ hospice. Reflective debriefing for care home staff has been found to help support staff and provide an educative and communicat... Read More about Online Supportive Conversations and Reflection Sessions (OSCaRS): A Feasibility Study with Care Home Staff during the Pandemic.

Foundation level barriers to the widespread adoption of digital solutions by care homes: Insights from three Scottish studies (2022)
Journal Article
Johnston, L., Koikkalainen, H., Anderson, L., Lapok, P., Lawson, A., & Shenkin, S. D. (2022). Foundation level barriers to the widespread adoption of digital solutions by care homes: Insights from three Scottish studies. International Journal of Environmental Research and Public Health, 19(12), Article 7407. https://doi.org/10.3390/ijerph19127407

The care home sector has great potential to benefit from technological innovations, and to be at the forefront of developing novel digital solutions to improve the experiences of care home residents, their families, and the staff caring for them. The... Read More about Foundation level barriers to the widespread adoption of digital solutions by care homes: Insights from three Scottish studies.

“Don’t let the trial kill the intervention”: How can researchers and care home teams implement complex intervention trials in care homes? (2022)
Journal Article
Shenkin, S., Gordon, A., Johnston, L., Henderson, C., & Achterberg, W. (2022). “Don’t let the trial kill the intervention”: How can researchers and care home teams implement complex intervention trials in care homes?. Age and ageing, 51(3), https://doi.org/10.1093/ageing/afac068

There is a need for a context-specific sustainable model for conduct of high-quality research in care homes Implementation of research interventions in care homes needs co-design, good relationships, understanding the context and funding... Read More about “Don’t let the trial kill the intervention”: How can researchers and care home teams implement complex intervention trials in care homes?.

Practice based approaches to supporting the work related wellbeing of frontline care workers in care homes: A Scoping Review (2021)
Journal Article
Johnston, L., Malcolm, C., Rambabu, L., Hockley, J., & Shenkin, S. D. (2021). Practice based approaches to supporting the work related wellbeing of frontline care workers in care homes: A Scoping Review. Journal of Long-Term Care, 2021, 230-240. https://doi.org/10.31389/jltc.66

The COVID-19 pandemic has reinforced the need to ensure that strategic and operational approaches to retain high quality, resilient frontline care home workers are informed by context specific, high quality evidence. A targeted scoping review asked t... Read More about Practice based approaches to supporting the work related wellbeing of frontline care workers in care homes: A Scoping Review.

Written Evidence to Independent Review of Adult Social Care Scotland (2021)
Report
Johnston, L. Written Evidence to Independent Review of Adult Social Care Scotland. Scottish Government

• The evidence presented here relates to four research studies conducted in relation to workforce resilience, burnout and support around death and dying in the care home sector. • While there are a wealth of resources to support care home staff well... Read More about Written Evidence to Independent Review of Adult Social Care Scotland.

Online Supportive Conversations & Reflection Sessions [OSCARS] with Care Home Staff Following A Resident’s Death: Improving Coping Mechanisms, Team Cohesion and Communication (2021)
Journal Article
Hockley, J., Johnston, L., Watson, J., & Shenkin, S. D. (2021). Online Supportive Conversations & Reflection Sessions [OSCARS] with Care Home Staff Following A Resident’s Death: Improving Coping Mechanisms, Team Cohesion and Communication. Age and ageing, 50(supp 1), i12-i42. https://doi.org/10.1093/ageing/afab030.63

Introduction COVID-19 Trauma Guidance suggests opportunities for structured, time-limited discussions about challenging experiences should be offered. It is unknown if such discussions can be effectively delivered online by palliative care specialis... Read More about Online Supportive Conversations & Reflection Sessions [OSCARS] with Care Home Staff Following A Resident’s Death: Improving Coping Mechanisms, Team Cohesion and Communication.

Avoiding Burnout of the Care Home Workforce During the COVID-19 Pandemic and Beyond: Sharing National Learning and Local Initiatives (2021)
Journal Article
Johnston, L., Malcolm, C., Rambabu, L., Hockley, J., & Shenkin, S. D. (2021). Avoiding Burnout of the Care Home Workforce During the COVID-19 Pandemic and Beyond: Sharing National Learning and Local Initiatives. Age and ageing, 50(Suppl. 1), i12-i42. https://doi.org/10.1093/ageing/afab030.62

Introduction COVID-19 in care homes has heightened the risk of staff burnout, undermining already problematic staff retention and low morale. There has been an associated proliferation of resources and online initiatives to support frontline workers... Read More about Avoiding Burnout of the Care Home Workforce During the COVID-19 Pandemic and Beyond: Sharing National Learning and Local Initiatives.

Online Supportive Conversations and Reflection Sessions (OSCaRS): A Feasibility Studywith care home staff during the pandemic (2021)
Report
Johnston, L. (2021). Online Supportive Conversations and Reflection Sessions (OSCaRS): A Feasibility Studywith care home staff during the pandemic. Edinburgh: CSO

A study in three cares homes was undertaken to assess the feasibility of providing online emotional support and practice-based learning on death/dying and end of life care during the pandemic of 2020, to groups of staff in care homes for older people... Read More about Online Supportive Conversations and Reflection Sessions (OSCaRS): A Feasibility Studywith care home staff during the pandemic.

Developing a Data & Innovation Platform for Care Homes In Scotland (2020)
Presentation / Conference
Johnston, L., Hockley, J., & Henderson, D. (2020, October). Developing a Data & Innovation Platform for Care Homes In Scotland. Presented at EuGMS Congress 2020, Online

Introduction: The COVID-19 pandemic has increased the need for reliable, real time data on the care of older people. We aimed to identify current data availability, challenges, and priorities for future research and innovations in Car... Read More about Developing a Data & Innovation Platform for Care Homes In Scotland.

Supporting the resilience and retention of frontline care workers in care homes for older people: A scoping review and thematic synthesis (2020)
Working Paper
Johnston, L., Malcolm, C., Rambabu, L., Hockley, J., & Shenkin, S. D. Supporting the resilience and retention of frontline care workers in care homes for older people: A scoping review and thematic synthesis

The COVID-19 pandemic has reinforced the need to ensure that strategic and operational approaches to retain high quality, resilient frontline care home workers, who are not registered nurses, are informed by context specific, high quality evidence.... Read More about Supporting the resilience and retention of frontline care workers in care homes for older people: A scoping review and thematic synthesis.

The Development of a Care Home Data Platform in Scotland: Insights from the Care Home Innovation Partnership, Lothian (2020)
Working Paper
Johnston, L., Hockley, J., Henderson, D. A., & Shenkin, S. D. The Development of a Care Home Data Platform in Scotland: Insights from the Care Home Innovation Partnership, Lothian

Care homes collect a large amount of data about their residents, and the care provided, but there is a lack of consistency in how this information is collected. There is also a need to minimise the burden of data collection on staff, ensure informati... Read More about The Development of a Care Home Data Platform in Scotland: Insights from the Care Home Innovation Partnership, Lothian.

Systematic review and thematic synthesis of the implementation and impact of holistic needs assessments for people affected by cancer (2019)
Presentation / Conference
Johnston, L., Young, J., & Campbell, K. (2019, September). Systematic review and thematic synthesis of the implementation and impact of holistic needs assessments for people affected by cancer. Poster presented at IPOS World Congress of Psycho-Oncology and Psychosocial Academy, Banff, Canada

Background/rationale or Objectives/purpose: International government and clinical policy recommends individuals affected by cancer should have all their needs assessed. Implementation of holistic needs assess-ments (HNA) is howev... Read More about Systematic review and thematic synthesis of the implementation and impact of holistic needs assessments for people affected by cancer.

Beneath the ‘PROM’? What people affected by cancer really value from services: thematic synthesis of findings from two national cancer programmes (2019)
Presentation / Conference
Johnston, L., & Young, J. (2019, September). Beneath the ‘PROM’? What people affected by cancer really value from services: thematic synthesis of findings from two national cancer programmes. Poster presented at IPOS World Congress of Psycho-Oncology and Psychosocial Academy, Banff, Canada

Objective/Purpose Internationally, little is known about how services contribute to positive changes in Patient Reported Outcome Measures (PROMs) from the patients’ perspective. This study identified the critical service components that people affec... Read More about Beneath the ‘PROM’? What people affected by cancer really value from services: thematic synthesis of findings from two national cancer programmes.

The implementation and impact of Holistic Needs Assessments for people affected by cancer: A systematic review and thematic synthesis of the literature (2019)
Journal Article
Johnston, L., Young, J., & Campbell, K. (2019). The implementation and impact of Holistic Needs Assessments for people affected by cancer: A systematic review and thematic synthesis of the literature. European Journal of Cancer Care, 28(3), Article e13087. https://doi.org/10.1111/ecc.13087

Objective: Globally, cancer services herald the use of Holistic Needs Assessments (HNA). Implementation is, however, heterogeneous. There is a need to understand what effect implementation variation has on patient experience, outcomes and service d... Read More about The implementation and impact of Holistic Needs Assessments for people affected by cancer: A systematic review and thematic synthesis of the literature.

More than a hanky and a leaflet: Supporting People with Individual Budgets after treatment for cancer in Lanarkshire (2019)
Presentation / Conference
Johnston, L., Coonagh, K., McComish, G., Russell, J., Pearson, C., & Campbell, K. (2019, February). More than a hanky and a leaflet: Supporting People with Individual Budgets after treatment for cancer in Lanarkshire. Presented at BPOS 2019 Annual Conference, Chester

Supporting People with Individual Budgets Project was funded by Macmillan Cancer Support Transforming Care after Treatment Programme. It aimed to combine motivational planning sessions with an individual budget of £250 to support people after treatme... Read More about More than a hanky and a leaflet: Supporting People with Individual Budgets after treatment for cancer in Lanarkshire.

How can national evaluators enhance evidence from local transformational change to influence policy and decision making? (2018)
Presentation / Conference
Campbell, K., Johnston, L., & Marron, B. (2018, November). How can national evaluators enhance evidence from local transformational change to influence policy and decision making?. Poster presented at UKONS 2018, Glasgow, Scotland

Background: A multidisciplinary team at Edinburgh Napier University are evaluating the Macmillan Cancer Support funded Transforming Care after Treatment programme (TCAT) in Scotland which stablished 25 local projects, each with different local approa... Read More about How can national evaluators enhance evidence from local transformational change to influence policy and decision making?.

Systematic review of the implementation and impact of holistic needs assessments for people affected by cancer (2018)
Presentation / Conference
Campbell, K., Johnston, L., & Young, J. (2018, November). Systematic review of the implementation and impact of holistic needs assessments for people affected by cancer. Poster presented at UKONS 2018, Glasgow, Scotland

Purpose: International government and clinical policy recommends people affected by cancer should have all their needs assessed. Implementation of holistic needs assessments (HNA) is however heterogeneous, involving different assessors, assessment to... Read More about Systematic review of the implementation and impact of holistic needs assessments for people affected by cancer.

The meaning and measurement of outcomes in survivorship (2018)
Presentation / Conference
Campbell, K., Johnston, L., & Marron, B. (2018, November). The meaning and measurement of outcomes in survivorship. Poster presented at UKONS 2018, Glasgow

Background: The Transforming Care after Treatment (TCAT) programme in Scotland, funded by Macmillan Cancer Support, oversees the implementation of different local approaches to achieving ‘good survivorship’ through enhancing follow up and assessment.... Read More about The meaning and measurement of outcomes in survivorship.

Protocol for a longitudinal mixed methods realist evaluation of holistic needs assessment and care planning for people affected by cancer (2018)
Journal Article
Johnston, L., & Campbell, K. (2018). Protocol for a longitudinal mixed methods realist evaluation of holistic needs assessment and care planning for people affected by cancer. BMC Health Services Research, 18, https://doi.org/10.1186/s12913-018-3373-6

Background: In 2012, approximately 14 million new cases of cancer were diagnosed. As a result of advances in treatment, screening and prevention programmes the number of people surviving cancer globally is also increasing. The growing understanding... Read More about Protocol for a longitudinal mixed methods realist evaluation of holistic needs assessment and care planning for people affected by cancer.

Transforming Care After Treatment Partnership, Integration and Co-ordination (2018)
Report
Campbell, K., & Johnston, L. (2018). Transforming Care After Treatment Partnership, Integration and Co-ordination. Scotland: Macmillan Cancer Support

This Bulletin presents the evidence and learning on the implementation of holistic needs assessment (HNA) within 11 completed local projects from the national evaluative perspective. The data sources used are given in Appendix One. It focuses on dif... Read More about Transforming Care After Treatment Partnership, Integration and Co-ordination.

Realistic and appreciative: developing a dual model of evaluation of ‘Transforming Care after Treatment’ programme in Scotland (2017)
Presentation / Conference
Johnston, L., & Smith, S. (2017, April). Realistic and appreciative: developing a dual model of evaluation of ‘Transforming Care after Treatment’ programme in Scotland. Poster presented at RCN International Nursing Research Conference 2017, Oxford

Background: The Transforming Care after Treatment programme in Scotland (TCAT) aims to improve the after care for people living with and beyond cancer by focussing on improving patient experience/outcomes, enhancing service integration/coordination,... Read More about Realistic and appreciative: developing a dual model of evaluation of ‘Transforming Care after Treatment’ programme in Scotland.

Holistic Needs Assessment (HNA) after treatment for colorectal cancer within outpatient clinics: using findings to improve practice and policies (2017)
Presentation / Conference
Johnston, L., Rodger, J., & Campbell, K. (2017, April). Holistic Needs Assessment (HNA) after treatment for colorectal cancer within outpatient clinics: using findings to improve practice and policies. Presented at RCN International Nursing Research Conference 2017, Oxford

Introduction: Patients can be unprepared for the impact of cancer and treatment. A proportion have unmet needs. The Transforming Care after Treatment (TCAT) programme in Scotland aims to improve after care for cancer survivors. Funded by Macmillan Ca... Read More about Holistic Needs Assessment (HNA) after treatment for colorectal cancer within outpatient clinics: using findings to improve practice and policies.

Analysing and interpreting the concerns data of people at end of treatment. Glass half empty or half full? (2017)
Presentation / Conference
Campbell, K., & Johnston, L. (2017, March). Analysing and interpreting the concerns data of people at end of treatment. Glass half empty or half full?. Poster presented at British Psychosocial Oncology Society Annual Conference, Oxford, UK

Background: Macmillan Cancer Support National Programme of Transforming Care after Treatment in Scotland (TCAT) has funded the implementation of 25 local projects, each with different approaches to redesigning care after treatment, in primary, second... Read More about Analysing and interpreting the concerns data of people at end of treatment. Glass half empty or half full?.

End of treatment holistic needs assessment –are psychosocial needs masked by physical concerns? (2017)
Presentation / Conference
Campbell, K., Johnston, L., & Marron, B. (2017, March). End of treatment holistic needs assessment –are psychosocial needs masked by physical concerns?. Poster presented at British Psychosocial Oncology Society, Oxford, UK

Background: The Transforming Care after Treatment programme in Scotland (TCAT) established national and regional structures to support the implementation of 25 local projects, each with different local approaches to achieving ‘good survivorship’. Fun... Read More about End of treatment holistic needs assessment –are psychosocial needs masked by physical concerns?.

Follow up after cancer treatment: Improving access to supported self-management through testing of a GP led Active Inclusion Pathway (2016)
Presentation / Conference
Johnston, L., Bradshaw, S., Campbell, K., & Durie, R. (2016, November). Follow up after cancer treatment: Improving access to supported self-management through testing of a GP led Active Inclusion Pathway. Poster presented at National Cancer Research Institute

Background The Transforming Care After Treatment (TCAT) programme aims to improve the aftercare for people living with and beyond cancer in Scotland. It is a partnership between the Scottish Government, Macmillian Cancer Support, NHS Scotland, Local... Read More about Follow up after cancer treatment: Improving access to supported self-management through testing of a GP led Active Inclusion Pathway.

Context, Circumstances and Concerns – the 3C’s in Cancer Follow Up and survivorship. (2016)
Presentation / Conference
Campbell, K., & Johnston, L. (2016, October). Context, Circumstances and Concerns – the 3C’s in Cancer Follow Up and survivorship. Presented at European Oncology Nursing Society

Context, Circumstances and Concerns – the 3C’s in Cancer Follow Up and survivorship. Introduction The large scale Transforming Care after Treatment programme in Scotland (TCAT), has funded the development and implementation of 25 local projects, each... Read More about Context, Circumstances and Concerns – the 3C’s in Cancer Follow Up and survivorship..

Interim Report Transforming Care After Treatment National Programme Evaluation (2016)
Report
Campbell, K., Johnston, L., Smith, S., Afseth, J., Brooks-young, P., Raeside, R., & Cruickshank, S. (2016). Interim Report Transforming Care After Treatment National Programme Evaluation. Scotland: Macmillan Cancer Support

Transforming Care After Treatment (TCAT) is a five year programme funded by Macmillan Cancer Support Scotland. TCAT is a partnership between the Scottish Government, Macmillan Cancer Support, NHS Scotland, local authorities and third sector organisat... Read More about Interim Report Transforming Care After Treatment National Programme Evaluation.

Technical Appendix: TCAT (2016)
Report
Campbell, K., & Johnston, L. (2016). Technical Appendix: TCAT. Scotland: Macmillan Cancer Support

No abstract available.

Transforming Care After Treatment Programme Evaluation (2015)
Report
Cruickshank, S., Campbell, K., Smith, S., Holland, A., & Johnston, L. (2015). Transforming Care After Treatment Programme Evaluation. Edinburgh, Scotland: Edinburgh Napier University

Baseline Report January 2015

Digital Exclusion Cyber Security - Improving The Online Safety Of Digitally Excluded Users
Report
Koikkalainen, H., Lapok, P., Johnston, L., & Lawson, A. (2022). Digital Exclusion Cyber Security - Improving The Online Safety Of Digitally Excluded Users. University of St Andrews/ Scottish Government Cyber Resilliance Unit

This exploratory study was designed to explore cyber security issues experienced by vulnerable adults who do not regularly have direct access to digital devices and the internet, with a special focus on people who are financially insecure and experie... Read More about Digital Exclusion Cyber Security - Improving The Online Safety Of Digitally Excluded Users.