Developing a Care Home Data Platform in Scotland: a mixed methods study of data routinely collected in care homes

Shenkin, Susan D.; Johnston, Lucy; Hockley, Jo; Henderson, David A.G.

Abstract

Background: Care homes collect extensive data about their residents, and their care, in multiple ways, for multiple purposes. We aimed to (1) identify what data are routinely collected, and (2) collate care home managers’ views and experiences of collecting, using and sharing data.
Methods: We examined data collected in six care homes across Lothian, Scotland. We extracted the meta-data, cross-referenced definitions and assessed the degree of harmonisation between care homes and with data sets currently in use in Scotland and internationally. We interviewed care home managers about their views and experiences of collecting, using and sharing data.
Results: We identified 15 core data items used routinely, with significant heterogeneity in tools and assessments used, and very limited harmonisation. Two overarching themes were identified of importance to the development of a care home data platform: 1) the rationale for collecting data, including to a) support person-centred care, b) share information, c) manage workforce and budget, and d) provide evidence to statutory bodies and 2) the reality of collecting data, including data accuracy, and understanding data in context.
Discussion: Considerable information is collected by care home staff, in varied formats, with heterogeneity of scope and definition, for range of reasons. We discuss the issues that should be considered to ensure that individual resident-level form the strong foundations for any data platform for care homes, which must also include, robust infrastructure and clear interoperability, with appropriate governance. It must be co-produced by academics, policy makers and sector representatives, with residents, their families, and care staff.

Citation

Shenkin, S. D., Johnston, L., Hockley, J., & Henderson, D. A. (2022). Developing a Care Home Data Platform in Scotland: a mixed methods study of data routinely collected in care homes. Age and ageing, 51(12), 1-9. https://doi.org/10.1093/ageing/afac265

• Journal Article Type: Article
• Acceptance Date: Sep 20, 2022
• Online Publication Date: Dec 19, 2022
• Publication Date: 2022
• Deposit Date: Sep 27, 2022
• Publicly Available Date: Sep 27, 2022
• Print ISSN: 0002-0729
• Publisher: Oxford University Press
• Peer Reviewed: Peer Reviewed
• Volume: 51
• Issue: 12
• Pages: 1-9
• DOI: https://doi.org/10.1093/ageing/afac265
• Keywords: data, care home, data platform, mixed methods, older people
• Public URL: http://researchrepository.napier.ac.uk/Output/2924713