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Developing a Care Home Data Platform in Scotland: a mixed methods study of data routinely collected in care homes

Shenkin, Susan D.; Johnston, Lucy; Hockley, Jo; Henderson, David A.G.


Susan D. Shenkin

Jo Hockley

David A.G. Henderson


Background: Care homes collect extensive data about their residents, and their care, in multiple ways, for multiple purposes. We aimed to (1) identify what data are routinely collected, and (2) collate care home managers’ views and experiences of collecting, using and sharing data.
Methods: We examined data collected in six care homes across Lothian, Scotland. We extracted the meta-data, cross-referenced definitions and assessed the degree of harmonisation between care homes and with data sets currently in use in Scotland and internationally. We interviewed care home managers about their views and experiences of collecting, using and sharing data.
Results: We identified 15 core data items used routinely, with significant heterogeneity in tools and assessments used, and very limited harmonisation. Two overarching themes were identified of importance to the development of a care home data platform: 1) the rationale for collecting data, including to a) support person-centred care, b) share information, c) manage workforce and budget, and d) provide evidence to statutory bodies and 2) the reality of collecting data, including data accuracy, and understanding data in context.
Discussion: Considerable information is collected by care home staff, in varied formats, with heterogeneity of scope and definition, for range of reasons. We discuss the issues that should be considered to ensure that individual resident-level form the strong foundations for any data platform for care homes, which must also include, robust infrastructure and clear interoperability, with appropriate governance. It must be co-produced by academics, policy makers and sector representatives, with residents, their families, and care staff.

Journal Article Type Article
Acceptance Date Sep 20, 2022
Online Publication Date Dec 19, 2022
Publication Date 2022
Deposit Date Sep 27, 2022
Publicly Available Date Sep 27, 2022
Print ISSN 0002-0729
Publisher Oxford University Press
Peer Reviewed Peer Reviewed
Volume 51
Issue 12
Pages 1-9
Keywords data, care home, data platform, mixed methods, older people
Public URL


Developing A Care Home Data Platform In Scotland: A Mixed Methods Study Of Data Routinely Collected In Care Homes (supplementary material) (278 Kb)

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