All Outputs (2)

Did I Take My Medication Today? Understanding Medicine Adherence for Adults with Intellectual/Developmental Disabilities Through Participatory Research (2024)
Presentation / Conference Contribution
Paterson, R., Adbulla, S., Spassiani, N., & Higgins, A. (2024, August). Did I Take My Medication Today? Understanding Medicine Adherence for Adults with Intellectual/Developmental Disabilities Through Participatory Research. Poster presented at IASSIDD, 17th World Congress: Reimagining Connections, Chicago, USA

Background: Medicine non-adherence has a significant impact on quality of life, mortality, and morbidity. In 2003, the World Health Organisation stated that medicines optimization may have a greater impact on chronic disease management compared to an... Read More about Did I Take My Medication Today? Understanding Medicine Adherence for Adults with Intellectual/Developmental Disabilities Through Participatory Research.

Making Survey Research Accessible for People with Intellectual and Developmental Disabilities (2024)
Book Chapter
Friedman, C., & Spassiani, N. A. (2024). Making Survey Research Accessible for People with Intellectual and Developmental Disabilities. In G. Bennett, & E. Goodall (Eds.), The Palgrave Encyclopedia of Disability (1-10). Springer. https://doi.org/10.1007/978-3-031-40858-8_77-1

Historically, research about people with intellectual and developmental disabilities (IDD) has been conducted through proxies because of ableist assumptions about people with IDD’s abilities to contribute to research and methodological challenges to... Read More about Making Survey Research Accessible for People with Intellectual and Developmental Disabilities.