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All Outputs (3)

The symptom profile and experience of children with rare life-limiting conditions: perspectives of their families and key health professionals (2011)
Report
Malcolm, C., Adams, S., Anderson, G., Gibson, F., Hain, R., Morley, A., & Forbat, L. (2011). The symptom profile and experience of children with rare life-limiting conditions: perspectives of their families and key health professionals. Stirling: Universi

This report documents a mixed-method study examining the symptom profile and family experience of two rare life-limiting conditions. Data was collected across the UK, using a symptom diary designed for the study and qualitative interviews, informed b... Read More about The symptom profile and experience of children with rare life-limiting conditions: perspectives of their families and key health professionals.

Intrafamilial genotyping of helicobacter pylori from faecal DNA (2011)
Journal Article
McMillan, M., MacKay, W. G., Williams, C. L., Shepherd, A. J., Malcolm, C., & Weaver, L. T. (2011). Intrafamilial genotyping of helicobacter pylori from faecal DNA. Gastroenterology Research and Practice, 2011, Article 491035. https://doi.org/10.1155/2011

Helicobacter pylori infection, often acquired in early childhood, is a global cause of undernutrition, gastritis, peptic ulcer disease and gastric carcinoma. This study tested the feasibility of using H. pylori shed in the faeces as a source of DNA f... Read More about Intrafamilial genotyping of helicobacter pylori from faecal DNA.

Challenging symptom profiles of life-limiting conditions in children: a survey of care professionals and families (2011)
Journal Article
Malcolm, C., Forbat, L., Anderson, G., Gibson, F., & Hain, R. (2011). Challenging symptom profiles of life-limiting conditions in children: a survey of care professionals and families. Palliative Medicine, 25(4), 357-364. https://doi.org/10.1177/026921631

This paper reports on data from the initial phase of a UK-wide study exploring life-limiting conditions (LLCs) in children where, because of their rarity, little is understood regarding the significant symptom challenges of families and care professi... Read More about Challenging symptom profiles of life-limiting conditions in children: a survey of care professionals and families.