The symptom profile and experience of children with rare life-limiting conditions: perspectives of their families and key health professionals
(2011)
Report
Malcolm, C., Adams, S., Anderson, G., Gibson, F., Hain, R., Morley, A., & Forbat, L. (2011). The symptom profile and experience of children with rare life-limiting conditions: perspectives of their families and key health professionals. Stirling: Universi
This report documents a mixed-method study examining the symptom profile and family experience of two rare life-limiting conditions. Data was collected across the UK, using a symptom diary designed for the study and qualitative interviews, informed b... Read More about The symptom profile and experience of children with rare life-limiting conditions: perspectives of their families and key health professionals.