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All Outputs (25)

Short stay hospital admissions for an acutely unwell child: A qualitative study of outcomes that matter to parents and professionals (2022)
Journal Article
Malcolm, C., King, E., France, E., Kyle, R. G., Kumar, S., Dick, S., …Hoddinott, P. (2022). Short stay hospital admissions for an acutely unwell child: A qualitative study of outcomes that matter to parents and professionals. PLOS ONE, 17(12), Article e

Background Numbers of urgent short stay admissions (SSAs) of children to UK hospitals are rising rapidly. This paper reports on experiences of SSAs from the perspective of parents accessing urgent care for their acutely unwell child and of health pr... Read More about Short stay hospital admissions for an acutely unwell child: A qualitative study of outcomes that matter to parents and professionals.

Insights from and limitations of data linkage studies: analysis of short-stay urgent admission referral source from routinely collected Scottish data (2022)
Journal Article
Dick, S., Kyle, R., Wilson, P., Aucott, L., France, E., King, E., …Turner, S. W. (2023). Insights from and limitations of data linkage studies: analysis of short-stay urgent admission referral source from routinely collected Scottish data. Archives of D

Introduction This study identified the referral source for urgent short-stay admissions (SSAs) and compared characteristics of children with SSA stratified by different referral sources. Methods Routinely acquired data from urgent admissions to Sc... Read More about Insights from and limitations of data linkage studies: analysis of short-stay urgent admission referral source from routinely collected Scottish data.

A realist evaluation of a home-based end of life care service for children and families: what works, for whom, how, in what circumstances and why? (2022)
Journal Article
Malcolm, C., & Knighting, K. (2022). A realist evaluation of a home-based end of life care service for children and families: what works, for whom, how, in what circumstances and why?. BMC Palliative Care, 21, Article 31. https://doi.org/10.1186/s12904-02

Background: Children’s palliative and end of life care is underpinned internationally by a commitment to provide care and support in the family’s preferred place, which may include home, hospital or hospice. Limited evidence on models of best practic... Read More about A realist evaluation of a home-based end of life care service for children and families: what works, for whom, how, in what circumstances and why?.

Practice based approaches to supporting the work related wellbeing of frontline care workers in care homes: A Scoping Review (2021)
Journal Article
Johnston, L., Malcolm, C., Rambabu, L., Hockley, J., & Shenkin, S. D. (2021). Practice based approaches to supporting the work related wellbeing of frontline care workers in care homes: A Scoping Review. Journal of Long-Term Care, 2021, 230-240. https://d

The COVID-19 pandemic has reinforced the need to ensure that strategic and operational approaches to retain high quality, resilient frontline care home workers are informed by context specific, high quality evidence. A targeted scoping review asked t... Read More about Practice based approaches to supporting the work related wellbeing of frontline care workers in care homes: A Scoping Review.

What does effective end-of-life care at home for children look like? A qualitative interview study exploring the perspectives of bereaved parents (2021)
Journal Article
Malcolm, C., & Knighting, K. (2021). What does effective end-of-life care at home for children look like? A qualitative interview study exploring the perspectives of bereaved parents. Palliative Medicine, 35(8), 1602-1611. https://doi.org/10.1177/02692163

Background: End-of-life care for children with life-shortening conditions is provided in a range of settings including hospital, hospice and home. What home-based, end-of-life care should entail or what best practice might look like is not widely re... Read More about What does effective end-of-life care at home for children look like? A qualitative interview study exploring the perspectives of bereaved parents.

Home-based end of life care for children and their families – a systematic scoping review and narrative synthesis (2020)
Journal Article
Malcolm, C., Katherine, K., & Charlotte, T. (2020). Home-based end of life care for children and their families – a systematic scoping review and narrative synthesis. Journal of Pediatric Nursing, 55, 126-133. https://doi.org/10.1016/j.pedn.2020.07.018

Abstract Problem: There is a growing international drive to deliver children’s palliative care services closer to home. Families should have choice of where end of life (EOL) care is provided with home as one option. This review aims to establish t... Read More about Home-based end of life care for children and their families – a systematic scoping review and narrative synthesis.

A relational understanding of sibling experiences of children with rare life-limiting conditions: Findings from a qualitative study (2013)
Journal Article
Malcolm, C., Gibson, F., Adams, S., Anderson, G., & Forbat, L. (2014). A relational understanding of sibling experiences of children with rare life-limiting conditions: Findings from a qualitative study. Journal of Child Health Care, 18(3), 230-240. https

Mucopolysaccharidoses (MPS) and Batten disease are rare life-limiting conditions (LLCs) characterised by progressive and permanent physical and cognitive decline. The impact of such conditions on families, and notably on siblings, has not yet been de... Read More about A relational understanding of sibling experiences of children with rare life-limiting conditions: Findings from a qualitative study.

Challenging symptoms in children with rare life-limiting conditions: findings from a prospective diary and interview study with families (2012)
Journal Article
Malcolm, C., Hain, R., Gibson, F., Adams, S., Anderson, G., & Forbat, L. (2012). Challenging symptoms in children with rare life-limiting conditions: findings from a prospective diary and interview study with families. Acta Pædiatrica, 101(9), 985-992. h

Aim:  The aim was to describe the nature, frequency, severity and management challenges of symptoms in children with two rare life-limiting conditions [Mucopolysaccharide (MPS) and Batten disease]. Methods:  This was an embedded mixed-method study... Read More about Challenging symptoms in children with rare life-limiting conditions: findings from a prospective diary and interview study with families.

Intrafamilial genotyping of helicobacter pylori from faecal DNA (2011)
Journal Article
McMillan, M., MacKay, W. G., Williams, C. L., Shepherd, A. J., Malcolm, C., & Weaver, L. T. (2011). Intrafamilial genotyping of helicobacter pylori from faecal DNA. Gastroenterology Research and Practice, 2011, Article 491035. https://doi.org/10.1155/2011

Helicobacter pylori infection, often acquired in early childhood, is a global cause of undernutrition, gastritis, peptic ulcer disease and gastric carcinoma. This study tested the feasibility of using H. pylori shed in the faeces as a source of DNA f... Read More about Intrafamilial genotyping of helicobacter pylori from faecal DNA.

Challenging symptom profiles of life-limiting conditions in children: a survey of care professionals and families (2011)
Journal Article
Malcolm, C., Forbat, L., Anderson, G., Gibson, F., & Hain, R. (2011). Challenging symptom profiles of life-limiting conditions in children: a survey of care professionals and families. Palliative Medicine, 25(4), 357-364. https://doi.org/10.1177/026921631

This paper reports on data from the initial phase of a UK-wide study exploring life-limiting conditions (LLCs) in children where, because of their rarity, little is understood regarding the significant symptom challenges of families and care professi... Read More about Challenging symptom profiles of life-limiting conditions in children: a survey of care professionals and families.

Children's understanding of cancer and views on health-related behaviour: a ‘draw and write’ study: Children's understanding of cancer and health behaviours (2010)
Journal Article
Knighting, K., Rowa-Dewar, N., Malcolm, C., Kearney, N., & Gibson, F. (2011). Children's understanding of cancer and views on health-related behaviour: a ‘draw and write’ study: Children's understanding of cancer and health behaviours. Child: Care, He

Background Few studies have explored young children’s understanding of cancer and health-related behaviours yet this is essential to develop health promotion initiatives that build on young children’s current knowledge levels and awareness. Method... Read More about Children's understanding of cancer and views on health-related behaviour: a ‘draw and write’ study: Children's understanding of cancer and health behaviours.

Prioritisation of future research topics for children’s hospice care by its key stakeholders: a Delphi study (2009)
Journal Article
Malcolm, C., Knighting, K., Forbat, L., & Kearney, N. (2009). Prioritisation of future research topics for children’s hospice care by its key stakeholders: a Delphi study. Palliative Medicine, 23(5), 398-405. https://doi.org/10.1177/0269216309104061

The Delphi process, widely used in health research to seek consensus on key issues amongst large stakeholder groups, was adopted to allow families, hospice staff/volunteers and linked professionals to identify and prioritise future research prioritie... Read More about Prioritisation of future research topics for children’s hospice care by its key stakeholders: a Delphi study.

Exploring the experiences and perspectives of families using a children’s hospice and professionals providing hospice care to identify future research priorities for children’s hospice care (2008)
Journal Article
Malcolm, C., Forbat, L., Knighting, K., & Kearney, N. (2008). Exploring the experiences and perspectives of families using a children’s hospice and professionals providing hospice care to identify future research priorities for children’s hospice care

The main objective of this study is to generate a list of priority topics for children’s hospice care research in Scotland from the perspective of its key stakeholders. The method consists of qualitative semi-structured interviews with families using... Read More about Exploring the experiences and perspectives of families using a children’s hospice and professionals providing hospice care to identify future research priorities for children’s hospice care.

Promoting the use of Personal Asthma Action Plans: a systematic review (2007)
Journal Article
Ring, N., Malcolm, C., Wyke, S., MacGillivray, S., Dixon, D., Hoskins, G., …Sheikh, A. (2007). Promoting the use of Personal Asthma Action Plans: a systematic review. Primary Care Respiratory Journal, 16(5), 271-283. https://doi.org/10.3132/pcrj.2007.00

Objectives: To investigate how best to encourage health professionals to promote, and for people with asthma to use, asthma action plans. Methods: Systematic review. Randomised controlled trials published between 1960 and 2006 were searched using mu... Read More about Promoting the use of Personal Asthma Action Plans: a systematic review.

The economic costs of health service treatments for asbestos-related mesothelioma deaths. (2006)
Journal Article
Watterson, A., Gorman, T., Malcolm, C., Robinson, M., & Beck, M. (2006). The economic costs of health service treatments for asbestos-related mesothelioma deaths. Annals of the New York Academy of Sciences, 1076(1), 871-881. https://doi.org/10.1196/annals

This article explores the complex and neglected picture of occupational and environmental disease healthcare costs specifically relating to asbestos. Diagnosed mesothelioma cases in Scotland in one calendar year were used to investigate the subject i... Read More about The economic costs of health service treatments for asbestos-related mesothelioma deaths..

Nursing best practice statements: an exploration of their implementation in clinical practice (2005)
Journal Article
Ring, N., Malcolm, C., Coull, A., Murphy-Black, T., & Watterson, A. (2005). Nursing best practice statements: an exploration of their implementation in clinical practice. Journal of Clinical Nursing, 14(9), 1048-1058. https://doi.org/10.1111/j.1365-2702.2

Aims and objectives. To explore implementation of the first five Best Practice Statements from the perspective of nurses involved in their development. Background. Best Practice Statements were introduced in Scotland to encourage consistent evidence... Read More about Nursing best practice statements: an exploration of their implementation in clinical practice.

Integrating environmental health into nursing and midwifery practice (2005)
Journal Article
Watterson, A., Thomson, P., Malcolm, C., Shepherd, A., & McIntosh, C. (2005). Integrating environmental health into nursing and midwifery practice. Journal of Advanced Nursing, 49(6), 665-674. https://doi.org/10.1111/j.1365-2648.2004.03340.x

Aim.  With the recognition that environmental health has relevance to all nursing and midwifery activities, the aim of this paper is to discuss nurses’ and midwives’ past and present involvement in environmental health in the UK, where the internatio... Read More about Integrating environmental health into nursing and midwifery practice.

Helicobacter Pylori in children is strongly associated with poverty (2004)
Journal Article
Malcolm, C., MacKay, W. G., Shepherd, A., & Weaver, L. T. (2004). Helicobacter Pylori in children is strongly associated with poverty. Scottish Medical Journal, 49(4), 136-138. https://doi.org/10.1177/003693300404900406

Background and Aims: To examine the association between prevalence of H. pylori colonisation and social deprivation in a sample of children investigated in hospital. Methods: A retrospective review of the hospital records of all children (n = 626) wh... Read More about Helicobacter Pylori in children is strongly associated with poverty.