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Helping the clinician help me: towards listening in cancer care

Snowden, Austyn; White, Craig A; Christie, Zara; Murray, Esther; McGowan, Clare; Scott, Rhona

Authors

Craig A White

Zara Christie

Esther Murray

Clare McGowan

Rhona Scott



Abstract

Despite global support for the ideal of shared decision making, its enactment remains difficult in practice. The UK charity, Macmillan Cancer Support, attempted to incorporate the principles of shared decision making within a programme of distress management in Scotland. Distress management begins by completing the Distress Thermometer (DT). Although the DT is a screening tool, its function in this programme was extended to facilitate collaborative communication within a consultation. The aim of this grounded theory was to analyse the patient experience of the process. Nineteen people underwent semi-structured interviews focused on their experience of distress management. Participants were a mixed-cancer cohort aged 40–79 years. Findings were discussed in a structured manner with a further 14 service users and carers, and 19 clinical specialists in cancer. Constant comparison of all data revealed that the process of positive distress management could best be explained by reference to the core category: ‘helping the clinician help me’. The emergence of this core category is detailed by situating its development within the iterative nature of the grounded theory method.

Journal Article Type Article
Acceptance Date Jan 1, 2012
Online Publication Date Oct 20, 2014
Publication Date May 22, 2012
Deposit Date Aug 19, 2015
Print ISSN 0966-0461
Publisher Mark Allen Healthcare
Peer Reviewed Peer Reviewed
Volume 21
Issue Sup10
Pages S18-S26
DOI https://doi.org/10.12968/bjon.2012.21.Sup10.S18
Keywords Cancer Distress Grounded theory Distress thermometer
Public URL http://researchrepository.napier.ac.uk/id/eprint/9012