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What is and isn’t working: Factors involved in sustaining community-based health and participation initiatives for people aging with intellectual and developmental disabilities

Spassiani, Natasha; Meisner, Brad; Abou Chacra, Megan S.; Heller, Tamar; Hammel, Joy

Authors

Brad Meisner

Megan S. Abou Chacra

Tamar Heller

Joy Hammel



Abstract

As people with intellectual and developmental disabilities (I/DD) age it is important that I/DD agencies are prepared to support healthy aging in homes and in communities. This study explored supports and barriers to sustaining community-based health and participation initiatives (CBHPI) for people aging with I/DD living in group homes managed by agencies. The study utilized interviews and photovoice with 70 participants—35 individuals with I/DD and 35 management/direct support agency staff. Data were analyzed through content analysis and triangulation of data where five themes emerged: Agency values and policies related to healthy aging; resources and staff competencies; communication between management and staff; community/university partnerships; peer relations. Findings show that I/DD agencies and people with I/DD value CBHPI, but they find them difficult to sustain due to limited resources and lack of training specific to aging with I/DD.

Citation

Spassiani, N., Meisner, B., Abou Chacra, M. S., Heller, T., & Hammel, J. (2019). What is and isn’t working: Factors involved in sustaining community-based health and participation initiatives for people aging with intellectual and developmental disabilities. Journal of Applied Research in Intellectual Disabilities, 32(6), 1465-1477. https://doi.org/10.1111/jar.12640

Journal Article Type Article
Acceptance Date Jun 4, 2019
Online Publication Date Jul 1, 2019
Publication Date 2019-11
Deposit Date Jun 5, 2019
Publicly Available Date Jul 2, 2020
Journal Journal of Applied Research in Intellectual Disbilities
Print ISSN 1360-2322
Electronic ISSN 1468-3148
Publisher Wiley
Peer Reviewed Peer Reviewed
Volume 32
Issue 6
Pages 1465-1477
DOI https://doi.org/10.1111/jar.12640
Keywords Intellectual/developmental disabilities, health promotion, knowledge translation, systems, sustainability,
Public URL http://researchrepository.napier.ac.uk/Output/1853389
Contract Date Jun 5, 2019

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