The perspectives of stakeholder of intellectual disability liaison nurse: a model of compassionate, person-centered care.

MacArthur, Juliet; Brown, Michael; Chouliara, Zo�; McKechanie, Andrew; Mack, Siobhan; Hayes, Matthew; Fletcher, Joan

Abstract

AIMS AND OBJECTIVES:

To investigate the experiences of patients with intellectual disabilities, family and paid carers regarding the role of liaison nurses and the delivery of compassionate, person-centred care. From this to propose a model of person-centred care embedded in these experiences.

BACKGROUND:

People with intellectual disabilities have a high number of comorbidities, requiring multidisciplinary care, and are at high risk of morbidity and preventable mortality. Provision of compassionate, person-centred care is essential to prevent complications and avoid death.

DESIGN:

A qualitative design was adopted with Interpretative Phenomenological Analysis for data analysis.

METHODS:

Semistructured interviews and focus groups were conducted. Data were analysed with a focus on compassionate, person-centred care elements and components. Themes were modelled to develop a clinically meaningful model for practice.

RESULTS:

Themes identified vulnerability, presence and the human interface; information balance; critical points and broken trust; roles and responsibilities; managing multiple transitions; 'flagging up' and communication.

CONCLUSIONS:

The findings provide the first 'anatomy' of compassionate, person-centred care and provide a model for operationalising this approach in practice. The applicability of the model will have to be evaluated further with this and other vulnerable groups.

RELEVANCE TO CLINICAL PRACTICE:

This is the first study to provide a definition of compassionate, person-centred care and proposes a model to support its application into clinical practice for this and other vulnerable groups

Citation

MacArthur, J., Brown, M., Chouliara, Z., McKechanie, A., Mack, S., Hayes, M., & Fletcher, J. (2016). The perspectives of stakeholder of intellectual disability liaison nurse: a model of compassionate, person-centered care. Journal of Clinical Nursing, 25(7-8), 972-982. https://doi.org/10.1111/jocn.13142

• Journal Article Type: Article
• Acceptance Date: Nov 9, 2015
• Online Publication Date: Feb 11, 2016
• Publication Date: 2016-04
• Deposit Date: Mar 3, 2016
• Print ISSN: 0962-1067
• Electronic ISSN: 1365-2702
• Publisher: Wiley
• Peer Reviewed: Peer Reviewed
• Volume: 25
• Issue: 7-8
• Pages: 972-982
• DOI: https://doi.org/10.1111/jocn.13142
• Keywords: Compassionate care; intellectual disability; liaison nurses; models of care; person-centred care
• Public URL: http://researchrepository.napier.ac.uk/id/eprint/9607
• Publisher URL: http://dx.doi.org/10.1111/jocn.13142