The perspectives of stakeholder of intellectual disability liaison nurse: a model of compassionate, person-centered care.
AIMS AND OBJECTIVES:
To investigate the experiences of patients with intellectual disabilities, family and paid carers regarding the role of liaison nurses and the delivery of compassionate, person-centred care. From this to propose a model of person-centred care embedded in these experiences.
People with intellectual disabilities have a high number of comorbidities, requiring multidisciplinary care, and are at high risk of morbidity and preventable mortality. Provision of compassionate, person-centred care is essential to prevent complications and avoid death.
A qualitative design was adopted with Interpretative Phenomenological Analysis for data analysis.
Semistructured interviews and focus groups were conducted. Data were analysed with a focus on compassionate, person-centred care elements and components. Themes were modelled to develop a clinically meaningful model for practice.
Themes identified vulnerability, presence and the human interface; information balance; critical points and broken trust; roles and responsibilities; managing multiple transitions; 'flagging up' and communication.
The findings provide the first 'anatomy' of compassionate, person-centred care and provide a model for operationalising this approach in practice. The applicability of the model will have to be evaluated further with this and other vulnerable groups.
RELEVANCE TO CLINICAL PRACTICE:
This is the first study to provide a definition of compassionate, person-centred care and proposes a model to support its application into clinical practice for this and other vulnerable groups
MacArthur, J., Brown, M., Chouliara, Z., McKechanie, A., Mack, S., Hayes, M., & Fletcher, J. (2016). The perspectives of stakeholder of intellectual disability liaison nurse: a model of compassionate, person-centered care. Journal of Clinical Nursing, 25(7-8), 972-982. https://doi.org/10.1111/jocn.13142
|Journal Article Type||Article|
|Acceptance Date||Nov 9, 2015|
|Online Publication Date||Feb 11, 2016|
|Deposit Date||Mar 3, 2016|
|Peer Reviewed||Peer Reviewed|
|Keywords||Compassionate care; intellectual disability; liaison nurses; models of care; person-centred care|
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