@article { , title = {The perspectives of stakeholder of intellectual disability liaison nurse: a model of compassionate, person-centered care.}, abstract = {AIMS AND OBJECTIVES: To investigate the experiences of patients with intellectual disabilities, family and paid carers regarding the role of liaison nurses and the delivery of compassionate, person-centred care. From this to propose a model of person-centred care embedded in these experiences. BACKGROUND: People with intellectual disabilities have a high number of comorbidities, requiring multidisciplinary care, and are at high risk of morbidity and preventable mortality. Provision of compassionate, person-centred care is essential to prevent complications and avoid death. DESIGN: A qualitative design was adopted with Interpretative Phenomenological Analysis for data analysis. METHODS: Semistructured interviews and focus groups were conducted. Data were analysed with a focus on compassionate, person-centred care elements and components. Themes were modelled to develop a clinically meaningful model for practice. RESULTS: Themes identified vulnerability, presence and the human interface; information balance; critical points and broken trust; roles and responsibilities; managing multiple transitions; 'flagging up' and communication. CONCLUSIONS: The findings provide the first 'anatomy' of compassionate, person-centred care and provide a model for operationalising this approach in practice. The applicability of the model will have to be evaluated further with this and other vulnerable groups. RELEVANCE TO CLINICAL PRACTICE: This is the first study to provide a definition of compassionate, person-centred care and proposes a model to support its application into clinical practice for this and other vulnerable groups}, doi = {10.1111/jocn.13142}, eissn = {1365-2702}, issn = {0962-1067}, issue = {7-8}, note = {Note: Early online view 11 Feb 2016 School: sch\_nms\_2015}, pages = {972-982}, publicationstatus = {Published}, publisher = {Wiley}, url = {http://researchrepository.napier.ac.uk/id/eprint/9607}, volume = {25}, keyword = {610.73 Nursing, RT Nursing, Compassionate care, intellectual disability, liaison nurses, models of care, person-centred care}, year = {2016}, author = {MacArthur, Juliet and Brown, Michael and Chouliara, Zoë and McKechanie, Andrew and Mack, Siobhan and Hayes, Matthew and Fletcher, Joan} }