ExtraCECI Project Theory of Change Workshop with stakeholders to refine the ExtraCECI intervention
Jan 21, 2025
Location
Accra, Ghana
Description
The Theory of Change workshop was oraganised with stakeholders at the Cedi Auditorium, University of Ghana. This workshop involved stakeholders who were invited to contribute to the 'extra' components proposed for the refinement of the community-based enhanced care intervention (CECI) intervention to become ExtraCECI.
Following the introduction of the concept of theory of change, stakeholders were grouped into five discusion groups to answer the following questions on the 'extra' components:
1. How can we empower people living with HIV/AIDS to engage, participate and contribute to their care decisions as part of the ExtraCECI intervention?
2. What ways can we work with healthcare professionals and Models of Hope to use mobile phones (text messaging for information sharing and voice calls for follow up, assessment and enabling feedback in the communication process) to deliver ExtraCECI?
Group Discussion The group discussions lasted for 30 - 45minutes, during which participants discussed the above questions providing answers that were later categorised following the s steps to achieving the theory of change starting from the step 8 and working down to step 1:
8. What do we want to achieve (for PLWHA and their careers, and health care professionals)? IMPACT
7. What do we want to be different about existing care services for PLWHA in the future? LONG TERM OUTCOMES
6. What changes would we like to see in PLWHA and their family's wellbeing? IMMEDIATE OUTCOMES
5. What should we do in terms of care and support for PLWHA- what should be delivered for them? TREATMENT AND CARE
4. How can we best identify all those who could benefit? AWARENESS
3. What does staff need to do this? TRAINING & SUPPORT
2. What do we need (eg. people, equipment, place, etc)? RESOURCES 1. How & Who do we need to support this intervention and make it happen? BUY-IN
Group responses and categorisations using the above steps were summarised and feedback provided to the team and stakeholders.
The Extra community-based enhanced care intervention (ExtraCECI) project was successfully launched at the Cedi Auditorium, located within the University of Ghana in Accra, Ghana on Monday, 20th January 2025. The ExtraCECI project aims to evaluate the effectiveness and cost-effectiveness of ExtraCECI to improve person-centred outcomes and quality of life for people living with HIV/AIDS compared to standard HIV care. The project launch created the opportunity to engage stakeholders and the public both national and internal to officially share the goals as well as create awareness of the project and its focus on person-centred care. The program was well attended by various stakeholders, including members of the University of Ghana’s community, HIV/AIDS advocacy groups, collaborators and representatives from the Ghana Health Service, Ghana AIDS Commission, Ghana Registered Nurses and Midwives Association, Ghana College of Nurses and Midwives, faculty, students, the media and the general public. There were representatives of the patient and public involvement (PPI) network, the Models of Hope, graduate students and community leaders in attendance. Throughout the event, participants were presented with the overall objectives of the ExtraCECI Project and a call to partner with stakeholders in achieving project success. Emphasis was placed on the importance of person-centred HIV care in Ghana, and the pivotal role this initiative will play in improving the quality of life and support for individuals living with HIV. The event served as a platform for knowledge exchange, networking, and the fostering of partnerships aimed at driving forward the project's mission and goals.
Patient and Public Involvement (PPI) in Research inception meeting for the ExtraCECI Project
Oct 4, 2024
Location
This engagement was initially organised virtually pending and an in-person engagement planned for January 2025
Description
Patient and Public Involvement (PPI) in Research inception meeting was held to first create awareness about the ExtraCECI project and to also discuss the rationale for involving patients and public in research. During this presentation, the development activities including the feasibility trial findings that informed the ExtraCECI project was discussed including the aims and objectives of the project. The first objective being the establishment of a patient and public involvement (PPI) network of support groups and stakeholders to inform research procedures and dissemination throughout the project implementation, this objective was discussed extensively. This started with a definition of PPI, their role in research projects and particularly how PPI is being involved in the ExtraCECI project and what their participation would look like. We concluded with a discussion on the project timelines, how often we will be engaging the PPI in each project year and the audience were given opportunity to ask questions.
