ExtraCECI Project Theory of Change Workshop with stakeholders to refine the ExtraCECI intervention
Jan 21, 2025
Location
Accra, Ghana
Description
The Theory of Change workshop was oraganised with stakeholders at the Cedi Auditorium, University of Ghana. This workshop involved stakeholders who were invited to contribute to the 'extra' components proposed for the refinement of the community-based enhanced care intervention (CECI) intervention to become ExtraCECI.
Following the introduction of the concept of theory of change, stakeholders were grouped into five discusion groups to answer the following questions on the 'extra' components:
1. How can we empower people living with HIV/AIDS to engage, participate and contribute to their care decisions as part of the ExtraCECI intervention?
2. What ways can we work with healthcare professionals and Models of Hope to use mobile phones (text messaging for information sharing and voice calls for follow up, assessment and enabling feedback in the communication process) to deliver ExtraCECI?
Group Discussion The group discussions lasted for 30 - 45minutes, during which participants discussed the above questions providing answers that were later categorised following the s steps to achieving the theory of change starting from the step 8 and working down to step 1:
8. What do we want to achieve (for PLWHA and their careers, and health care professionals)? IMPACT
7. What do we want to be different about existing care services for PLWHA in the future? LONG TERM OUTCOMES
6. What changes would we like to see in PLWHA and their family's wellbeing? IMMEDIATE OUTCOMES
5. What should we do in terms of care and support for PLWHA- what should be delivered for them? TREATMENT AND CARE
4. How can we best identify all those who could benefit? AWARENESS
3. What does staff need to do this? TRAINING & SUPPORT
2. What do we need (eg. people, equipment, place, etc)? RESOURCES 1. How & Who do we need to support this intervention and make it happen? BUY-IN
Group responses and categorisations using the above steps were summarised and feedback provided to the team and stakeholders.
The Extra community-based enhanced care intervention (ExtraCECI) project was successfully launched at the Cedi Auditorium, located within the University of Ghana in Accra, Ghana on Monday, 20th January 2025. The ExtraCECI project aims to evaluate the effectiveness and cost-effectiveness of ExtraCECI to improve person-centred outcomes and quality of life for people living with HIV/AIDS compared to standard HIV care. The project launch created the opportunity to engage stakeholders and the public both national and internal to officially share the goals as well as create awareness of the project and its focus on person-centred care. The program was well attended by various stakeholders, including members of the University of Ghana’s community, HIV/AIDS advocacy groups, collaborators and representatives from the Ghana Health Service, Ghana AIDS Commission, Ghana Registered Nurses and Midwives Association, Ghana College of Nurses and Midwives, faculty, students, the media and the general public. There were representatives of the patient and public involvement (PPI) network, the Models of Hope, graduate students and community leaders in attendance. Throughout the event, participants were presented with the overall objectives of the ExtraCECI Project and a call to partner with stakeholders in achieving project success. Emphasis was placed on the importance of person-centred HIV care in Ghana, and the pivotal role this initiative will play in improving the quality of life and support for individuals living with HIV. The event served as a platform for knowledge exchange, networking, and the fostering of partnerships aimed at driving forward the project's mission and goals.
Patient and Public Involvement (PPI) in Research inception meeting for the ExtraCECI Project
Oct 4, 2024
Location
This engagement was initially organised virtually pending and an in-person engagement planned for January 2025
Description
Patient and Public Involvement (PPI) in Research inception meeting was held to first create awareness about the ExtraCECI project and to also discuss the rationale for involving patients and public in research. During this presentation, the development activities including the feasibility trial findings that informed the ExtraCECI project was discussed including the aims and objectives of the project. The first objective being the establishment of a patient and public involvement (PPI) network of support groups and stakeholders to inform research procedures and dissemination throughout the project implementation, this objective was discussed extensively. This started with a definition of PPI, their role in research projects and particularly how PPI is being involved in the ExtraCECI project and what their participation would look like. We concluded with a discussion on the project timelines, how often we will be engaging the PPI in each project year and the audience were given opportunity to ask questions.
Gender and Sexuality Research at Edinburgh Napier University
Mar 6, 2024
Location
Merchiston Campus, room: MER_H11
Description
Let’s get together and listen to colleagues working on gender and sexuality! And then let’s talk about their fascinating ideas, and how they relate to our own work and topics! This event is envisaged as informal and friendly gathering, following the success of similar gathering in 2023. We want to continue on this good tradition, and build new connections, learn about inspiring research we are doing across the university, feel inspired and nurtured.
Please send any queries to: Dr Roberto Kulpa (r.kulpa@napier.ac.uk)
SCHEDULE
14:00-14:10
Welcome (Roberto Kulpa)
14:10-15:00 TRANS LIVES
GUEST: Gina Gwenffrewi (University of Edinburgh) will start with an input about trans* people's cultural production online (i.e. YouTube, Twitter/X), framing the moral panic, and its impact on the trans* communities.
Rob Clucas (Law) will speak to the latest ‘gender critical’ challenge to the Gender Recognition Act 2004 in the appeal to the Supreme Court in the For Women Scotland case. He suggests that a solution to the current poisonous polemic around trans* rights can usefully be sought in the dialogic theory of Martin Buber (Buber 1958).
Toni Kania (Social Sciences) will introduce their PhD project about conceptualising bodily autonomy and sovereignty of trans* people – and from trans* peoples’ perspective – in Poland.
15:00-15:10 Coffee and pastries break
15:10-16:00 GENDERED VIOLENCE
Amy Beddows (Counselling) will speak about the potential of horror texts as tools for survivors processing the experiences of gendered violence.
Anne Schwan (English) will reflect on femicide, perpetrator narratives and the challenge of restorative justice, drawing from her analysis of Em Strang's novel “Quinn” (2023).
Fiona McQueen (Social Sciences) will conclude this section pondering on her project on Scottish young men’s attitudes towards prevention messages on violence against women, incl. queer & trans men’s accounts and insights.
16:00-16:10 Coffee and pastries break
16:10-17:00 REPRESENTATIONS
Yen Nee Wong (Social Sciences) will introduce us to queer cultures of ballroom dancing and the role of Strictly Come Dancing’s representations and mainstreaming.
David Bishop (Creative Writing) will speak about his creative writing PhD, instigation into the scarcity of queer sleuths in historical mystery fiction set before the Victorian era, and the politics of outing and authorship.
Phiona Stanley (Tourism) will talk about labels – ‘spinsters’, ‘crazy cat ladies’, ‘witches’. It is also, in theoretical terms, about queering queerness by negotiating the queer and deeply gendered queerness of spinsterhood.
17:00-17:10 Coffee and pastries break
17:10-17:45 POP!
Ashley Stein (Music) will introduce their PhD project on how hyperpop and other electronic music practices can be used to destabilise gender binaries.
Frederik Byrn Køhlert (English, Visual Cultures) will close this input section with a reflection on the representation of gender and sexuality in comics & graphic novels, incl. examples from work as editor of a Routledge series on Gender, Sexuality, and Comics.
17:45-onwards: Post-Event Drinks & Food at nearby The Golf Tavern
30-31 Wright's Houses, Bruntsfield, EH10 4HR
Event Organisation:
Dr Roberto Kulpa
School of Applied Sciences: Deputy Research Degrees Lead
Co-Director: MSc Applied Social Research
Co-Investigator: (2022-2026) ‘RESIST. Fostering Queer Feminist Intersectional Resistances against Transnational Anti-Gender Politics’ (EU Horizon Europe grant no. 101060749).
