A relational understanding of sibling experiences of children with rare life-limiting conditions: Findings from a qualitative study
(2013)
Journal Article
Malcolm, C., Gibson, F., Adams, S., Anderson, G., & Forbat, L. (2014). A relational understanding of sibling experiences of children with rare life-limiting conditions: Findings from a qualitative study. Journal of Child Health Care, 18(3), 230-240. https
Mucopolysaccharidoses (MPS) and Batten disease are rare life-limiting conditions (LLCs) characterised by progressive and permanent physical and cognitive decline. The impact of such conditions on families, and notably on siblings, has not yet been de... Read More about A relational understanding of sibling experiences of children with rare life-limiting conditions: Findings from a qualitative study.