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Voting and the Scottish referendum: perspectives of people with intellectual disabilities and their family and paid carers (2016)
Journal Article
Willis, D. S., McGlade, I., Gallagher, M., & Menabney, C. (2016). Voting and the Scottish referendum: perspectives of people with intellectual disabilities and their family and paid carers. Disability and Society, 31(7), 914-928. https://doi.org/10.1080/09687599.2016.1211002

Voting is a human right for every citizen yet many people with intellectual disabilities do not vote or have little support to exercise their right to vote. This article explores views on the wider aspects of voting against the backdrop of the Scotti... Read More about Voting and the Scottish referendum: perspectives of people with intellectual disabilities and their family and paid carers.

The human papillomavirus and HPV vaccine: accounts from young people from Black, Asian and Minority Ethnic groups in Scotland aged 16-26 years (2016)
Presentation / Conference Contribution
Carnegie, E., Whittaker, A., Gray-Brunton, C., Kennedy, C., Hogg, R., Pow, J., Pollock, K., Hilton, S., Hardy, S., Willis, D., & Hanif, N. (2016, April). The human papillomavirus and HPV vaccine: accounts from young people from Black, Asian and Minority Ethnic groups in Scotland aged 16-26 years. Paper presented at RCN International Nursing Research Conference 2016

Background: School nurses play important roles in delivering human papillomavirus (HPV) vaccination programme in United Kingdom. International research indicates lower HPV vaccination uptake rates among Black, Asian and Minority Ethnic (BAME) groups... Read More about The human papillomavirus and HPV vaccine: accounts from young people from Black, Asian and Minority Ethnic groups in Scotland aged 16-26 years.

What influences women with intellectual disabilities to attend breast screening? Experiences of women who have and have not participated (2016)
Journal Article
Willis, D. S., & Willis, D. (2016). What influences women with intellectual disabilities to attend breast screening? Experiences of women who have and have not participated. British Journal of Learning Disabilities, 44(4), 269-276. https://doi.org/10.1111/bld.12158

Background: Despite breast screening in Britain being free to all women within the allotted age range, uptake of this service is often poor in women with intellectual disabilities. Reasons put forward are numerous, including poor knowledge, pain and... Read More about What influences women with intellectual disabilities to attend breast screening? Experiences of women who have and have not participated.

Reflective writing: The student nurse's perspective on reflective writing and poetry writing (2015)
Journal Article
Coleman, D., & Willis, D. S. (2015). Reflective writing: The student nurse's perspective on reflective writing and poetry writing. Nurse Education Today, 35(7), 906-911. https://doi.org/10.1016/j.nedt.2015.02.018

Summary

Background

Reflective writing is a mandatory part of nurse education but how students develop their skills and use reflection as part of their experiential learning remains relatively unknown. Understanding reflective writing in all for... Read More about Reflective writing: The student nurse's perspective on reflective writing and poetry writing.

Working with the disabled patient: Exploring student nurses views for curriculum development using a swot analysis (2015)
Journal Article
Willis, D., & Thurston, M. (2015). Working with the disabled patient: Exploring student nurses views for curriculum development using a swot analysis. Nurse Education Today, 35(2), 383-387. https://doi.org/10.1016/j.nedt.2014.10.013

Summary

Background

Increased longevity will mean an increase in people presenting with cognitive and physical disabilities, such as sight loss or dementia. The Patient Rights (Scotland) Act 2011 states that health care should be patient-focusse... Read More about Working with the disabled patient: Exploring student nurses views for curriculum development using a swot analysis.

Preparing for your death (2014)
Book
Willis, D. (2014). Preparing for your death. FAIR, Glasgow University, Good Life, Good Death, Good Grief

A helpful guide for people with learning disabilities and their carers.

Paid- and family-carers' views on supporting women with intellectual disability through breast screening: Carers views on breast screening (2014)
Journal Article
Willis, D., Kilbride, L., Horsburgh, D., & Kennedy, C. (2015). Paid- and family-carers' views on supporting women with intellectual disability through breast screening: Carers views on breast screening. European Journal of Cancer Care, 24(4), 473-482. https://doi.org/10.1111/ecc.12245

The cancer needs of people with intellectual disabilities are increasingly being debated. This paper explores the views and experiences of paid- and family-carers when supporting women with intellectual disabilities through breast screening. An ethno... Read More about Paid- and family-carers' views on supporting women with intellectual disability through breast screening: Carers views on breast screening.

Inconsistencies in the roles of family- and paid- carers in monitoring health issues in people with learning disabilities: some implications for the integration of health and social care (2014)
Journal Article
Willis, D. (2014). Inconsistencies in the roles of family- and paid- carers in monitoring health issues in people with learning disabilities: some implications for the integration of health and social care. British Journal of Learning Disabilities, 43, 24-31. https://doi.org/10.1111/bld.12082

Accessible summary

•This paper looks at the views of paid- and family-carers about discussing health matters with people with learning disabilities.
•The author found that the roles of paid- and family-carers in monitoring health were not clearly... Read More about Inconsistencies in the roles of family- and paid- carers in monitoring health issues in people with learning disabilities: some implications for the integration of health and social care.

Breast screening: participation of women with intellectual disabilities (2013)
Journal Article
Willis, D. (2013). Breast screening: participation of women with intellectual disabilities. Learning Disability Practice, 16(4), 24-26. https://doi.org/10.7748/ldp2013.05.16.4.24.e1422

The NHS breast cancer screening programme has resulted in overdiagnosis of breast cancer in the general population. For women with intellectual disabilities, participation has been lower than in the general population. This article considers the effe... Read More about Breast screening: participation of women with intellectual disabilities.

An ethnographic exploration of the influences around participation in breast screening for women with learning disabilities (2012)
Thesis
Willis, D. An ethnographic exploration of the influences around participation in breast screening for women with learning disabilities. (Thesis). Edinburgh Napier University. http://researchrepository.napier.ac.uk/id/eprint/5543

Background

Greater longevity means that many more women with learning disabilities (LD) are becoming eligible to participate in the NHS Breast Cancer Screening Programme (NHSBCSP). The NHSBCSP is used to detect early signs of breast cancer and is... Read More about An ethnographic exploration of the influences around participation in breast screening for women with learning disabilities.

Breast cancer surveillance. (2010)
Book Chapter
Willis, D., Satge, D., & Sullivan, S. G. (2010). Breast cancer surveillance. In D. Satge, & J. Merrick (Eds.), Cancer in Children and Adults with Intellectual Disabilities: Current Research Aspects (103-112). Nova Science Publishers

Cervical cancer surveillance in women with learning disabilities (2010)
Journal Article
Sullivan, S. G., Satgé, D., & Willis, D. (2010). Cervical cancer surveillance in women with learning disabilities. International Journal of Child Health and Human Development, 3, 157-164

Cervical cancer is the second most common cancer among women world-wide. Objective: Evaluation of cervical cancer risks, frequency and screening uptake in women with learning disability (LD). Method: Review of the literature. Results: Few data are av... Read More about Cervical cancer surveillance in women with learning disabilities.

Menopausal experiences of women with Intellectual Disabilities (2010)
Journal Article
Willis, D., Wishart, J. G., & Muir, W. J. (2010). Menopausal experiences of women with Intellectual Disabilities. Journal of Applied Research in Intellectual Disabilities, 24, 74-85. https://doi.org/10.1111/j.1468-3148.2010.00566.x

Background 
Little is known about the menopause in women with intellectual disabilities (ID) save that its onset is earlier than in the general population, and earlier still in women with Down’s syndrome (DS). This study directly explored menopausa... Read More about Menopausal experiences of women with Intellectual Disabilities.

Cervical cancer surveillance. (2010)
Book Chapter
Sullivan, S. G., Satge, D., & Willis, D. (2010). Cervical cancer surveillance. In D. Satgé, & J. Merrick (Eds.), Cancer in Children and Adults with Intellectual Disabilities: Current Research Aspects (113-122). Nova Science Publishers

Carer knowledge and experiences with menopause in women with Intellectual Disabilities (2010)
Journal Article
Willis, D., Wishart, J. G., & Muir, W. J. (2010). Carer knowledge and experiences with menopause in women with Intellectual Disabilities. Journal of Policy and Practice in Intellectual Disabilities, 7, 42-48. https://doi.org/10.1111/j.1741-1130.2010.00246.x

Overall life expectancy for women with intellectual disabilities (ID) is now significantly extended, and many will live long enough to experience menopause. Little is known about how carers support women with ID through this important stage in their... Read More about Carer knowledge and experiences with menopause in women with Intellectual Disabilities.