“Teaches People That I'm More Than a Disability”: Using Nominal Group Technique in Patient-Oriented Research for People With Intellectual and Developmental Disabilities

Spassiani, Natasha A; Sawyer, Amanda R; Chacra, Megan S Abou; Koch, Kimberley; Muñoz, Yasmin A; Lunsky, Yona

Abstract

Individuals with intellectual and developmental disabilities (IDD) have complex healthcare needs, which are often unmet. Nominal group technique (NGT) uses a mixed-methods approach, which may engage the IDD population in the research process in a person-centered manner and address the shortcomings of traditional research methods with this population. NGT was used with a group of 10 self-advocates to evaluate a series of healthcare tools created by and for individuals with IDD. Participants provided helpful input about the strengths of these tools and suggestions to improve them. NGT was found to be an effective way to engage all participants in the research process.

Citation

Spassiani, N. A., Sawyer, A. R., Chacra, M. S. A., Koch, K., Muñoz, Y. A., & Lunsky, Y. (2016). “Teaches People That I'm More Than a Disability”: Using Nominal Group Technique in Patient-Oriented Research for People With Intellectual and Developmental Disabilities. Intellectual and Developmental Disabilities, 54(2), 112-122. https://doi.org/10.1352/1934-9556-54.2.112

• Journal Article Type: Article
• Acceptance Date: Oct 12, 2015
• Publication Date: Apr 1, 2016
• Deposit Date: May 18, 2017
• Publicly Available Date: May 25, 2017
• Journal: Intellectual and Developmental Disabilities
• Print ISSN: 1934-9556
• Publisher: American Association on Intellectual and Developmental Disabilities
• Peer Reviewed: Peer Reviewed
• Volume: 54
• Issue: 2
• Pages: 112-122
• DOI: https://doi.org/10.1352/1934-9556-54.2.112
• Keywords: intellectual and developmental disabilities, healthcare tools, nominal group technique, patient-oriented research
• Public URL: http://researchrepository.napier.ac.uk/Output/684525
• Contract Date: May 25, 2017