Online information for Spontaneous Coronary Artery Dissection (SCAD) survivors and their families: a systematic appraisal of content and quality of websites

Weddell, Joseph; Jawad, Danielle; Buckley, Thomas; Redfern, Julie; Mansur, Zarin; Elliott, Natalie; Hanson, Coral; Gallagher, Robyn

Abstract

Background
Spontaneous coronary artery dissection (SCAD) survivors often seek information online. However, the quality and content of websites for SCAD survivors is uncertain. This review aimed to systematically identify and appraise websites for SCAD survivors.

Methods
A systematic review approach was adapted for websites. A comprehensive search of SCAD key-phrases was performed using an internet search engine during January 2023. Websites targeting SCAD survivors were included. Websites were appraised for quality using Quality Component Scoring System (QCSS) and Health Related Website Evaluation Form (HRWEF), suitability using the Suitability Assessment Method (SAM), readability using a readability generator, and interactivity. Content was appraised using a tool based on SCAD international consensus literature. Raw scores from tools were concerted to percentages, then classified variably as excellent through to poor.

Results
A total of 50 websites were identified and included from 600 screened. Overall, content accuracy/scope (53.323.3) and interactivity (67.111.5) were poor, quality was fair (59.122.3, QCSS) and average (83.15.8, HRWEF) and suitability was adequate (54.913.8, SAM). The mean readability grade was 11.6 (2.3), far exceeding the recommendations of 8. By website type, survivor affiliated and medically peer-reviewed health information websites scored highest. Appraisal tools had limitations, such as overlapping appraisal of similar things and less relevant items due to internet modernity.

Conclusion
Many online websites are available for SCAD survivors, but often have limited and/or inaccurate content, poor quality, are not tailored to the demographic, and are difficult to read. Appraisal tools for health website require consolidation and further development.

Citation

Weddell, J., Jawad, D., Buckley, T., Redfern, J., Mansur, Z., Elliott, N., Hanson, C., & Gallagher, R. (2024). Online information for Spontaneous Coronary Artery Dissection (SCAD) survivors and their families: a systematic appraisal of content and quality of websites. International Journal of Medical Informatics, 184, Article 105372. https://doi.org/10.1016/j.ijmedinf.2024.105372

• Journal Article Type: Article
• Acceptance Date: Feb 4, 2024
• Online Publication Date: Feb 11, 2024
• Publication Date: 2024-04
• Deposit Date: Feb 5, 2024
• Publicly Available Date: Feb 12, 2025
• Print ISSN: 1386-5056
• Publisher: Elsevier
• Peer Reviewed: Peer Reviewed
• Volume: 184
• Article Number: 105372
• DOI: https://doi.org/10.1016/j.ijmedinf.2024.105372
• Keywords: Spontaneous Coronary Artery Dissection (SCAD), websites, content, quality, suitability, appraisal
• Public URL: http://researchrepository.napier.ac.uk/Output/3502904