Self-management of health by people with intellectual and developmental disabilities

Friedman, Carli; Rizzolo, Mary C.; Spassiani, Natasha A.

Abstract

Background
Self‐management of health includes people with intellectual and developmental disabilities (IDD) playing a key role in health management in collaborating with healthcare professionals.
Methods
This study analysed data from Personal Outcome Measures® surveys (n = 1,341) to explore self‐management of health. We had the following research questions: Who is most likely to be supported to self‐manage their health? How does being supported to self‐manage impact different areas of health? and How does being supported to self‐manage impact other health‐related organizational supports?
Results
Findings revealed the impact of self‐management of health can be wide‐ranging, regardless of impairment severity. When supported to self‐manage their health, healthcare professionals were more likely to address healthcare issues, and interventions were more likely to be effective.
Conclusions
Self‐management represents a paradigm shift for people with IDD because it transforms people from passive recipients to active directors of their health.

Citation

Friedman, C., Rizzolo, M. C., & Spassiani, N. A. (2019). Self-management of health by people with intellectual and developmental disabilities. Journal of Applied Research in Intellectual Disabilities, 32(3), 600-609. https://doi.org/10.1111/jar.12554

• Journal Article Type: Article
• Acceptance Date: Nov 19, 2018
• Online Publication Date: Dec 21, 2018
• Publication Date: 2019-05
• Deposit Date: Jan 30, 2019
• Publicly Available Date: Jan 31, 2019
• Journal: Journal of Applied Research in Intellectual Disabilities
• Print ISSN: 1360-2322
• Publisher: Wiley
• Peer Reviewed: Peer Reviewed
• Volume: 32
• Issue: 3
• Pages: 600-609
• DOI: https://doi.org/10.1111/jar.12554
• Keywords: organizational supports, participant direction, people with intellectual and developmental disabilities, self‐management of health,
• Public URL: http://researchrepository.napier.ac.uk/Output/1438434