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The experience of type 2 diabetes self-management in adults with intellectual disabilities and their caregivers: A review of the literature using meta-aggregative synthesis and an appraisal of rigour

Maine, Andrew; Brown, Micahel; Dickson, Adele; Truesdale, Maria

Authors

Micahel Brown

Adele Dickson

Maria Truesdale



Abstract

People with intellectual disabilities (ID) experience significant barriers to diabetes self-management (DSM), yet there remains a paucity of research within this population. An overview of the literature on people with ID and their caregivers’ experiences of living with and self-managing type 2 diabetes (T2D) is provided.
Methods Meta-aggregative methods were adopted to synthesise results, and an appraisal was reported of rigour.
Result A total of eight studies met the inclusion criteria and four themes were extracted: i) “Frustration over lifestyle adjustments”; ii) "Limited understanding and inadequate educational resources"; iii) “Limited training and knowledge in staff”; iv) "Potential for effective DSM with appropriate support".
Conclusion Current support is inadequate to meet the needs of people with ID and their caregivers self-managing diabetes. Structured education to improve health literacy and diabetes knowledge in people with ID is required, together with training for caregivers which leads to a culture of nurturing autonomy.

Citation

Maine, A., Brown, M., Dickson, A., & Truesdale, M. (2020). The experience of type 2 diabetes self-management in adults with intellectual disabilities and their caregivers: A review of the literature using meta-aggregative synthesis and an appraisal of rigour. Journal of Intellectual Disabilities, 24(2), 253-267. https://doi.org/10.1177/1744629518774172

Journal Article Type Article
Acceptance Date Apr 6, 2018
Online Publication Date May 15, 2018
Publication Date 2020-06
Deposit Date Apr 10, 2018
Publicly Available Date Apr 10, 2018
Journal Journal of Intellectual Disabilities
Print ISSN 1744-6295
Publisher SAGE Publications
Peer Reviewed Peer Reviewed
Volume 24
Issue 2
Pages 253-267
DOI https://doi.org/10.1177/1744629518774172
Keywords Intellectual disability, diabetes, self-management, care-givers, independent living,
Public URL http://researchrepository.napier.ac.uk/Output/1147870

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Maine, A. (2018). The experience of type 2 diabetes self-management in adults with intellectual disabilities and their caregivers: A review of the literature using meta-aggregative synthesis and an appraisal of rigour. Journal of Intellectual Disabilities, ISSN 1744-6295pp. xx-xx. Copyright ©2018 (Copyright Holder). Reprinted by permission of SAGE Publications


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Copyright Statement
Maine, A. (2018). The experience of type 2 diabetes self-management in adults with intellectual disabilities and their caregivers: A review of the literature using meta-aggregative synthesis and an appraisal of rigour. Journal of Intellectual Disabilities, ISSN 1744-6295pp. xx-xx. Copyright ©2018 (Copyright Holder). Reprinted by permission of SAGE Publications







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