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Research priorities about stoma-related quality of life from the perspective of people with a stoma: A pilot survey

Hubbard, Gill; Taylor, Claire; Beeken, Becca; Campbell, Anna; Gracey, Jackie; Grimmett, Chloe; Fisher, Abi; Ozakinci, Gozde; Slater, Sarah; Gorely, Trish

Authors

Gill Hubbard

Claire Taylor

Becca Beeken

Jackie Gracey

Chloe Grimmett

Abi Fisher

Gozde Ozakinci

Sarah Slater

Trish Gorely



Abstract

Background:There is a recognized need to include patients in setting research priorities. Research priorities identified by people with a stoma are rarely elicited.
Objectives: To improve the quality of life of people with a stoma through use of evidence- based practice based on research priorities set by patients.
Design and Methods: Online pilot survey publicized in 2016 via United Kingdom stoma charities. People ranked nine stoma- related quality of life topics in order of research priority.
Participants: People 16 years of age and over who currently have or have had a stoma for treatment for any medical condition.
Analysis: Distributions of the priority scores for each of the nine research topics were examined. Group differences were explored using either the Mann–Whitney U- test or the Kruskal–Wallis test depending on the number of groups.
Results: In total, 225 people completed the survey. The most important research priority was pouch leak problems and stoma bag/appliance problems followed by hernia risk. There were statistically significant differences in ranking research priorities between males and females, age, underlying disease that led to a stoma, stoma type and length of time with a stoma.
Conclusion: People with a stoma are willing to engage in and set research priorities. The results should contribute towards future research about setting the research agenda for the study of stoma- related concerns that impact quality of life.

Citation

Hubbard, G., Taylor, C., Beeken, B., Campbell, A., Gracey, J., Grimmett, C., …Gorely, T. (2017). Research priorities about stoma-related quality of life from the perspective of people with a stoma: A pilot survey. Health Expectations, 20(6), 1421-1427. https://doi.org/10.1111/hex.12585

Journal Article Type Article
Acceptance Date May 16, 2017
Online Publication Date Jul 4, 2017
Publication Date 2017-12
Deposit Date Jul 4, 2017
Publicly Available Date Mar 28, 2024
Journal Health Expectations
Print ISSN 1369-6513
Electronic ISSN 1369-7625
Publisher Wiley
Peer Reviewed Peer Reviewed
Volume 20
Issue 6
Pages 1421-1427
DOI https://doi.org/10.1111/hex.12585
Keywords Colostomy, ostomy, public/patient involvement, research priorities, stoma, urostomy
Public URL http://researchrepository.napier.ac.uk/Output/957698

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Publisher Licence URL
http://creativecommons.org/licenses/by/4.0/

Copyright Statement
This is the peer reviewed version of the following article: Hubbard G, Taylor C, Beeken B, et al. Research priorities about stoma-related quality of life from the perspective of people with a stoma: A pilot survey. Health Expect. 2017;00:1–7. which has been published in final form at http://dx.doi.org/10.1111/hex.12585. This article may be used for non-commercial purposes in accordance with Wiley Terms and Conditions for Self-Archiving.







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