Parental Home-Based Pulse Oximetry Monitoring For Adults With Intellectual Disabilities At Risk Of Serious Respiratory Problems Including Covid-19: A Brief Report

Finlayson, Janet; Roberts, Nicola Jane; Holt, Tim; Roast, Jan; McCardle, Marion; Parsonage, Maria; Slade, Katherine; Sellers, Ceri; Frighi, Valerie

Abstract

Background
People with intellectual disabilities (ID) are at high risk of developing respiratory health issues. The COVID-19 pandemic has compounded this, with serious consequences, and for some, death. Despite home-based oxygen saturation monitoring being recommended for people with ID, there is a stark lack of evidence in the literature on its feasibility.

Method
We conducted 3-day baseline home-based oxygen saturation monitoring, using pulse oximeters, with eight parents of nine adults with ID in Scotland. Two eligible parents also completed a further 2 weeks of monitoring, and returned an evaluation questionnaire on its feasibility.

Results
Baseline mean readings for eight adults with ID were within the normal range (%Sp02 ≥ 95), and for another one 94%. Fluctuations over the 3-day assessment period were experienced by six of these individuals. However, these variations were within limits which are not dangerous (lowest reading 92%), implying that parental home-based pulse oximetry monitoring is likely to be safe for adults with ID. The two parents who completed the evaluation found home-based pulse oximetry monitoring to be easy/very easy to do, and effective/very effective.

Conclusions
This is the first research study, albeit with a very small sample, to report on the potential feasibility of parental home-based pulse oximetry monitoring for adults with ID. Home-based pulse oximetry monitoring appears to be safe in adults with ID at risk of developing serious respiratory problems, and not difficult for their parents to do. There is an urgent need to replicate this work, using a larger sample, to promote home-based respiratory health monitoring more widely for people with ID.

• Journal Article Type: Article
• Acceptance Date: Mar 16, 2023
• Online Publication Date: Apr 12, 2023
• Publication Date: 2023-07
• Deposit Date: May 17, 2023
• Publicly Available Date: May 17, 2023
• Journal: Journal of Intellectual Disability Research
• Print ISSN: 0964-2633
• Publisher: Wiley
• Peer Reviewed: Peer Reviewed
• Volume: 67
• Issue: 7
• Pages: 690-699
• DOI: https://doi.org/10.1111/jir.13030
• Keywords: intellectual disabilities, oxygen saturation, parent-carers, pulse oximetry, respiratory health monitoring