L. P. McKeown
Caregivers of people with multiple sclerosis: experiences of support
McKeown, L. P.; Porter-Armstrong, A. P.; Baxter, G. D.
Abstract
The aim of this pheno menological study was to gain an understanding of the experiences of a group of caregivers of people with multiple sclerosis (MS). Sixteen caregivers from Northern Ireland and the Republic of Ireland participated in focus group interviews. The theme of support, either sought or received, emerged as a major aspect of the experiences described. C aregivers’ feelings about, and experiences of, support appeared to change over time. Four common phases that caregivers experienced in relation to support were identified as: ‘rejecting’, ‘resisting’, ‘seeking’ and ‘accepting’ support. This paper will present and discuss these four phases. The study findings highlight the complexity of issues surrounding a caregiver’s decision to seek and accept support. It is hoped that the phases identified within this study are useful in depicting how caregivers of people with MS may progress through stages in their desire for, and acceptance of, support. Findings from this study are useful to healthcare professionals who work with people with MS and their caregivers by increasing awareness that a caregiver’s attitude toward and acceptance of support changes over time.
Citation
McKeown, L. P., Porter-Armstrong, A. P., & Baxter, G. D. (2004). Caregivers of people with multiple sclerosis: experiences of support. Multiple Sclerosis, 10(2), 219-230. https://doi.org/10.1191/1352458504ms1008oa
Journal Article Type | Article |
---|---|
Publication Date | 2004-04 |
Deposit Date | Nov 11, 2021 |
Journal | Multiple Sclerosis Journal |
Print ISSN | 1352-4585 |
Electronic ISSN | 1477-0970 |
Publisher | SAGE Publications |
Peer Reviewed | Peer Reviewed |
Volume | 10 |
Issue | 2 |
Pages | 219-230 |
DOI | https://doi.org/10.1191/1352458504ms1008oa |
Keywords | caregivers, community networks, delivery of healthcare, health personnel, multiple sclerosis, social support |
Public URL | http://researchrepository.napier.ac.uk/Output/2820997 |
You might also like
Repeatability of high frequency ultrasound scanning in pressure ulcer prevention: can it be achieved?
(2008)
Presentation / Conference Contribution
Experiences of mirror therapy in the sub-acute phase of stroke (in World Stroke Congress Abstracts, 2020)
(2020)
Presentation / Conference Contribution
The reliability of the graded Wolf Motor Function Test for stroke
(2020)
Journal Article
Downloadable Citations
About Edinburgh Napier Research Repository
Administrator e-mail: repository@napier.ac.uk
This application uses the following open-source libraries:
SheetJS Community Edition
Apache License Version 2.0 (http://www.apache.org/licenses/)
PDF.js
Apache License Version 2.0 (http://www.apache.org/licenses/)
Font Awesome
SIL OFL 1.1 (http://scripts.sil.org/OFL)
MIT License (http://opensource.org/licenses/mit-license.html)
CC BY 3.0 ( http://creativecommons.org/licenses/by/3.0/)
Powered by Worktribe © 2024
Advanced Search