Life Interrupted: Experiences of adolescents, young adults and their family living with malignant melanoma
McInally, Wendy; Gray?Brunton, Carol; Chouliara, Zoe; Kyle, Richard G.
Dr Carol Gray Brunton C.GrayBrunton@napier.ac.uk
Richard G. Kyle
Melanoma is one of the most common human malignancies; yet, it is often thought of as a disease of adulthood rather than one affecting adolescents and young adults. This study sought to understand the experiences of adolescents, young adults and their family living with malignant melanoma.
A qualitative study using Interpretive Phenomenological Analysis, through a multi-perspective design.
Data collection was conducted between January and August 2018 in each participant's Primary Care Centre when they were attending for an outpatient appointment. Each young person and a nominated family member were interviewed (n = 10) either individually (n = 4) or as a dyad (n = 6) according to their personal choice. In-depth semi-structured interviews were conducted and audio-recorded with the participant's consent. Interview data were transcribed verbatim and analysed.
The metanarrative ‘Life Interrupted’ was the core conceptual thread woven throughout the findings. It represents the interconnections and interrelationships between the adolescent or young adult and their family. Being able to recognize the disease and seek support was challenging with often limited physical, emotional or social support resulting in feelings of fear and isolation. Four super-ordinate themes were identified: (a) ‘Is it Serious’, (b) ‘Too Much too Young’, (c) ‘Not the Same’ and (d) ‘Time to Live’.
With the rising incidence of MM in the adolescents and young adults population globally, there are demands to improve healthcare professionals and nurse's knowledge and understanding of MM. As young people with MM experience their journey outside specialist cancer services, the care delivery for this patient group and their families require stronger links between services.
This study will inform the improvement of care delivery for MM in order that this patient group is provided with the same access to service delivery as other adolescents and young adults with cancer.
McInally, W., Gray?Brunton, C., Chouliara, Z., & Kyle, R. G. (2021). Life Interrupted: Experiences of adolescents, young adults and their family living with malignant melanoma. Journal of Advanced Nursing, 77(9), 3867-3879. https://doi.org/10.1111/jan.14959
|Journal Article Type||Article|
|Acceptance Date||Jun 15, 2021|
|Online Publication Date||Jul 10, 2021|
|Deposit Date||Jul 22, 2021|
|Publicly Available Date||Jul 22, 2021|
|Journal||Journal of Advanced Nursing|
|Peer Reviewed||Peer Reviewed|
|Keywords||adolescents, experiences, family, interpretative phenomenological analysis, malignant melanoma, narrative, nursing, qualitative, research, young adults|
Life Interrupted: Experiences Of Adolescents, Young Adults And Their Family Living With Malignant Melanoma
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This is an open access article under the terms of the Creative Commons Attribution License, which permits use, distribution and reproduction in any medium, provided the original work is properly cited.
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