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Transitions from child to adult health care for young people with intellectual disabilities: A systematic review

Brown, Michael; Macarthur, Juliet; Higgins, Anna; Chouliara, Zoe

Authors

Michael Brown

Juliet Macarthur

Zoe Chouliara



Abstract

Aims
To examine the experiences of health transitions for young people with intellectual disabilities and their carers and identify the implications for nursing practice.

Design
A systematic review and critical appraisal of qualitative, quantitative, and mixed methods studies.

Data sources
A search of the relevant literature published 2007–2017 was carried out in AMED, ASSIA, CINAHL, MEDLINE, PsycINFO, PubMed, and Science Direct Sociological Abstracts databases.

Review methods
A total of 12 of 637 papers identified in the search met the inclusion criteria for this review. A narrative review of the papers was undertaken by synthesizing the key findings and grouping them into concepts and emergent themes.

Results
Four main themes were identified: (a) becoming an adult; (b) fragmented transition process and care; (c) parents as advocates in emotional turmoil; and (d) making transitions happen.

Conclusion
The range of issues that have an impact on the transition from child to adult health services for young people with intellectual disabilities and their carers raise important implications for policy development, nursing practice, and education.

Citation

Brown, M., Macarthur, J., Higgins, A., & Chouliara, Z. (2019). Transitions from child to adult health care for young people with intellectual disabilities: A systematic review. Journal of Advanced Nursing, 75(11), 2418-2434. https://doi.org/10.1111/jan.13985

Journal Article Type Review
Acceptance Date Jan 8, 2019
Online Publication Date Feb 28, 2019
Publication Date 2019-11
Deposit Date Nov 14, 2019
Publicly Available Date Feb 29, 2020
Print ISSN 0309-2402
Publisher Wiley
Peer Reviewed Peer Reviewed
Volume 75
Issue 11
Pages 2418-2434
DOI https://doi.org/10.1111/jan.13985
Keywords complex needs; health services; intellectual disabilities; nursing; systematic review; transitions; young people
Public URL http://researchrepository.napier.ac.uk/Output/2318978

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Copyright Statement
"This is the peer reviewed version of the following article: Brown, M., Macarthur, J., Higgins, A., & Chouliara, Z. (2019). Transitions from child to adult health care for young people with intellectual disabilities: A systematic review. Journal of Advanced Nursing, 75(11), 2418-2434, which has been published in final form at https://doi.org/10.1111/jan.13985. This article may be used for non-commercial purposes in accordance with Wiley Terms and Conditions for Use of Self-Archived Versions."


Transitions from child to adult health care for young people with intellectual disabilities: A systematic review_Table (79 Kb)
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