Disparate routes through support: negotiating the sites, stages and support of informal dementia care

Egdell, Valerie; Bond, John; Brittain, Katie; Jarvis, Helen

Abstract

Worldwide people with dementia are usually cared for at home by informal carers who may themselves have poor health and/or live in social situations which intensify their needs. The scale of these needs continues to be underappreciated and they are exacerbated by the limited social, cultural and emotional resources that carers can draw upon. This paper looks at the disparities in support, and the complex negotiations made by carers, as they reconcile the everyday realities of informal care in the home. Appreciation of these issues is essential in understanding carers’ coping strategies in an ageing population.

Citation

Egdell, V., Bond, J., Brittain, K., & Jarvis, H. (2010). Disparate routes through support: negotiating the sites, stages and support of informal dementia care. Health & place, 16, 101-107. https://doi.org/10.1016/j.healthplace.2009.09.002

• Journal Article Type: Article
• Acceptance Date: Sep 2, 2009
• Online Publication Date: Sep 11, 2009
• Publication Date: 2010-01
• Deposit Date: Apr 21, 2011
• Electronic ISSN: 1353-8292
• Publisher: Elsevier
• Peer Reviewed: Peer Reviewed
• Volume: 16
• Pages: 101-107
• DOI: https://doi.org/10.1016/j.healthplace.2009.09.002
• Keywords: Care; support networks; household resources; dementia
• Public URL: http://researchrepository.napier.ac.uk/id/eprint/4350
• Publisher URL: http://dx.doi.org/10.1016/j.healthplace.2009.09.002