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Why do patients decline to take part in a research project involving pulmonary rehabilitation?

Taylor, Renay; Dawson, Simonne; Roberts, Nicola; Sridhar, Mangalam; Partridge, Martyn R.

Authors

Renay Taylor

Simonne Dawson

Mangalam Sridhar

Martyn R. Partridge



Abstract

Background
It is important that those taking part in research trials are as representative as possible of those with the disease being studied. In a study of those with chronic obstructive pulmonary disease involving pulmonary rehabilitation, 120 of 297 suitable patients responded that they did not wish to take part in the trial. We were keen to know why these patients declined to take part in the study.
Methods
A total of 120 patients who had responded that they did not wish to take part in the main trial were approached to ask if they would be willing to undertake a semi-structured face-to-face interview in their own home or by telephone. Those who were willing (n=39) underwent tape-recorded interviews and data analysis was performed using the framework method.
Results
This was a qualitative study which revealed that several themes influenced patients’ willingness or otherwise to take part in a research project involving pulmonary rehabilitation. Travelling to the hospital and location of the rehabilitation, along with competing commitments, and a variable perception of the benefits to the patient were clearly major factors and some had previous negative experiences of either the hospital, healthcare or research. While there was an element of negativity or impaired understanding regarding the research itself, the other factors appeared to be of greater importance.
Conclusion
Recruitment to pulmonary rehabilitation courses or recruitment to research involving pulmonary rehabilitation may be more successful if the location of the rehabilitation can be made as near to the patient's home as possible, and if the patient is given as much information as possible about what is involved.

Journal Article Type Article
Acceptance Date Apr 13, 2007
Online Publication Date May 31, 2007
Publication Date 2007-09
Deposit Date Aug 30, 2022
Journal Respiratory Medicine
Print ISSN 0954-6111
Publisher Elsevier
Peer Reviewed Peer Reviewed
Volume 101
Issue 9
Pages 1942-1946
DOI https://doi.org/10.1016/j.rmed.2007.04.012
Keywords COPD, Pulmonary rehabilitation, Decline, Trial participation, Research
Public URL http://researchrepository.napier.ac.uk/Output/2899709